We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.
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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.
We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.
Hello all my name is Jesse Hill im 37yrs old. I have been having seizures for 8 years now just been geeting treated for the past 3. I was diagnosed with left tempro lobe seizures. The thing that...
Hello all,
I'm reaching out to anyone who has had the same or similar experience as me. I've been diagnosed with Temporal Lobe Epilepsy (TLE) for the past 5 years. I've had...
Hello all,
I'm reaching out to anyone who has had the same or similar experience as me. I've been diagnosed with Temporal Lobe Epilepsy (TLE) for the past 5 years. I've had...
https://www.epilepsy.com/connect/forums/my-epilepsy-diary/my-story-1
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Hi! My name is Samantha and I developed a seizure disorder in my twenties. I have been writing about it and posting the writings here.
https://samiamseizurestories.home.blog/
If anyone...
There has been a recent email chain due to an upcoming presentation of a specific treatment for epilepsy that will be held at an upcoming Epilepsy Foundation Metropolitan Washington Meet Up group...
So, to introduce myself...
I'm a 36 y/o Canadian-American guy, currently living in New Orleans, though Montreal is my hometown. I had my first seizure at age 20 in early 2003, and my...
Hi! So last night, while I was sleep, I felt all of my muscles tighten in a way they never had before, and then I felt really weird and scared. I don’t remember much else. Then I woke up. I’m not...
My son is started having seizures at 3.5 one night out of nowhere he had a grand Mal rushed him to the ER they checked his vital watched him and let us go home nothing else for a while then BOOM...
Hi, I'm new to this forum. I am very happy to find a place where I can read your stories and feeling related as well as supported. My daughter is 9 and was diagnosed with Epilepsy last week...
Hello,
I have a long, and somewhat extensive history with brain issues and seizures.
It starts back in 1989, my senior year in high school. Shortly after graduation I was found...
This is something that I’ve always kind of wanted to talk about with people who have been through it, so I only talk about it when I have to. I had my first grand mal seizure when I was 15. Then...
my story started when I was born. I had a blank spot in my brain the doctors said I would have had seizures either way. When I was 5 I was in a car accident. This car accident was really bad I...
Hello
I am 28 years old. I have been doing a little of research to find out what would be better, seizure medication or CBD oil. I had my first seizure when I was 22 years old. The doctor...
Good night, first of all I'd like to say English is not my native so I might have some grammatical mistakes, my name is Walter and i have my first seizure at the age of 15 without any...
I have recently experienced my first grand mal seizure episodes and am unsure on how best to proceed and am pretty shaken up by the experience.
I am 25 and live in the UK, first i want to...
Hi there,
I'm new to the community
Thanks for this active community
I am a 31 yr healthy ( as far as I know) female and I think I might have had a seizure. I don't have...
I got custody of my nephew when he was 4yrs old. He was this tiny little gigglebox that could never seem to stop laughing no matter what he did, his laugh was so infectious to everyone around him...