Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Topic: Share Your Story

Created By: Evans789 | 02/2019 | 4 Comments

This is something that I’ve always kind of wanted to talk about with people who have been through it, so I only talk about it when I have to. I had my first grand mal seizure when I was 15. Then...

Created By: rachell | 02/2019 | 0 Comments

my story started when I was born. I had a blank spot in my brain the doctors said I would have had seizures either way. When I was 5 I was in a car accident. This car accident was really bad I...

Created By: mdery25 | 02/2019 | 1 Comment

Hello
I am 28 years old. I have been doing a little of research to find out what would be better, seizure medication or CBD oil. I had my first seizure when I was 22 years old. The doctor...

Created By: WalterCisneros | 02/2019 | 2 Comments

Good night, first of all I'd like to say English is not my native so I might have some grammatical mistakes, my name is Walter and i have my first seizure at the age of 15 without any...

Created By: Jackd102 | 02/2019 | 0 Comments

I have recently experienced my first grand mal seizure episodes and am unsure on how best to proceed and am pretty shaken up by the experience.

I am 25 and live in the UK, first i want to...

Created By: sia | 01/2019 | 4 Comments

Hi there,
I'm new to the community
Thanks for this active community
I am a 31 yr healthy ( as far as I know) female and I think I might have had a seizure. I don't have...

Created By: Angels2sweet4u2 | 01/2019 | 1 Comment

I got custody of my nephew when he was 4yrs old. He was this tiny little gigglebox that could never seem to stop laughing no matter what he did, his laugh was so infectious to everyone around him...

Created By: jblowitski | 01/2019 | 1 Comment

If you want to know my story that with Epilepsy here are three great YouTube videos I made showing my history and experience over the past 6 and a half years with this condition (Refractory...

Created By: andrewmetzger00 | 01/2019 | 0 Comments

Hello All,

I graduated with a B.A. in May of 2017 while working full-time. I moved to with my wife and daughter to a new town and began law school later that Fall. I had no history of...

Created By: murdanyc | 01/2019 | 5 Comments

My Epileptic issues started in 2017 when I experienced a car crash due to going unconsious while driving. I hit 2 parked cars, totaling my car. 2 women came out to see if I was ok, when they came...

Created By: Bigreddog#1 | 01/2019 | 0 Comments

I feel as if my company is targeting me by assigning my job responsibilities to another manager. A new manager just started a month ago or so and she has been given all of my job duties such as...

Created By: Getya13 | 01/2019 | 2 Comments

Hello, I found this forum while searching google for "marijuana coughing small seizure"

I'm 37, Male, 6'1", 250lbs, I smoke high grade (18-25% THC) flowers from a...

Created By: Charlee_5c36b5cc81dea | 01/2019 | 2 Comments

My youngest daughter, Charlee, had her first grand mal seizure when she was ten months old. The doctors kept telling us it was just febrile. I knew it wasn't but they wouldn't listen....

Created By: ninkatok123 | 01/2019 | 2 Comments

Nice to join this web

Created By: Music4Nations | 01/2019 | 4 Comments
Created By: Jasmarie21 | 01/2019 | 1 Comment

I started having seizures while pregnant. Then I started to have two more after I had my first baby. I started taking keppra one dose in the morning/one at night.

Created By: koka14 | 01/2019 | 1 Comment

My son was 10 months old when I witnessed his first seizure. At the time his pediatrician told me about febrile seizures since it occurred with a 102 temp and that it is common at a young age but...

Created By: scrislip1 | 12/2018 | 2 Comments

Hi everyone,
I am a brain tumor survivor. I had epilepsy for 8 years and constant, elastic seizures. I had my tumor removed at age 8, and have been seizure free. Recently, I wrote my first...

Created By: xxibgdrgn | 12/2018 | 0 Comments

Hello,
I am a 23 year old male living in Germany. My mother is 49 years old and she had her first "seizure" in November 2018 while we were eating something. She couldn't talk...

Created By: Kplato22 | 12/2018 | 1 Comment

I've lived with my boyfriend for 2 years now. The beginning of this year, he had 4 awful seizures in the middle of the night while he was sleeping. Grand mal, they are hereditary from one...

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