Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Topic: Share Your Story

Created By: Mysterymare | 03/2019 | 0 Comments

Today I had an odd episode where I was going to get something from the fridge when all of a sudden I felt hazy, slowed down, stopped in my tracks then I had some odd abdominal muscle contractions...

Created By: hayleigh sigle | 03/2019 | 3 Comments

Hi, mt name is Hayleigh and i am 15 and has epilepsy my whole life. I have petit mal epilepsy and i am currently 5 months siezure free! I have not met anyone who understands what I go through and...

Created By: sillygirl | 03/2019 | 3 Comments

Has anybody on here with photosensitive/pattern sensitive epilepsy ever started their own business? I cannot work anymore. Computers (not just the light, but the flashing screens and patterns and...

Created By: Jenks289 | 02/2019 | 7 Comments

Hi, Im hoping to share and maybe get some feedback. As im sure many of you can relate, I don’t have anyone that really understands what I go through or how I feel and no one can really answer my...

Created By: jad.lebanon | 02/2019 | 3 Comments

hi all,
i would like to share my story with you maybe I'll find some matches to mine.
i was diagnosed with epilepsy at the age of 8 years old and started medication until the age...

Created By: DJP_5c75c3c435d9e | 02/2019 | 6 Comments

Hello:
I was diagnosed with Epilepsy around 1983 and was seizure free for the first six years. In 1989 i had a traumatic event that caused a seizure and the 90s were a horrible time of off...

Created By: britax | 02/2019 | 2 Comments

Hello,
I am diagnosed with epilepsy when I was 9, because I had grand mal, and went through testing. Until today, I had 3 grand mal, and last one was when I was 15.
I felt very good...

Created By: jessehill | 02/2019 | 1 Comment

Hello all my name is Jesse Hill im 37yrs old. I have been having seizures for 8 years now just been geeting treated for the past 3. I was diagnosed with left tempro lobe seizures. The thing that...

Created By: jfull15 | 02/2019 | 3 Comments

Hello all,

I'm reaching out to anyone who has had the same or similar experience as me. I've been diagnosed with Temporal Lobe Epilepsy (TLE) for the past 5 years. I've had...

Created By: jfull15 | 02/2019 | 1 Comment

Hello all,

I'm reaching out to anyone who has had the same or similar experience as me. I've been diagnosed with Temporal Lobe Epilepsy (TLE) for the past 5 years. I've had...

Created By: jfull15 | 02/2019 | 1 Comment

https://www.epilepsy.com/connect/forums/my-epilepsy-diary/my-story-1

Created By: George123 | 02/2019 | 2 Comments

There are several ways to improve your basic academy skills to advanced professional skills. BA Training California is one of them.
https://www.batrainingincalifornia.com/

Created By: Jerryevans | 02/2019 | 0 Comments

When I become a student I find jobs in the IT field but I have not industry experience. business analyst internship nyc is one of the better institutes in New York who provide training as well as...

Created By: SamSkobel | 02/2019 | 2 Comments

Hi! My name is Samantha and I developed a seizure disorder in my twenties. I have been writing about it and posting the writings here.
https://samiamseizurestories.home.blog/
If anyone...

Created By: jblowitski | 02/2019 | 13 Comments

There has been a recent email chain due to an upcoming presentation of a specific treatment for epilepsy that will be held at an upcoming Epilepsy Foundation Metropolitan Washington Meet Up group...

Created By: malajube | 02/2019 | 2 Comments

So, to introduce myself...

I'm a 36 y/o Canadian-American guy, currently living in New Orleans, though Montreal is my hometown. I had my first seizure at age 20 in early 2003, and my...

Created By: Gigig701 | 02/2019 | 2 Comments

Hi! So last night, while I was sleep, I felt all of my muscles tighten in a way they never had before, and then I felt really weird and scared. I don’t remember much else. Then I woke up. I’m not...

Created By: Grannywatts75 | 02/2019 | 2 Comments

My son is started having seizures at 3.5 one night out of nowhere he had a grand Mal rushed him to the ER they checked his vital watched him and let us go home nothing else for a while then BOOM...

Created By: hopefulmama | 02/2019 | 18 Comments

Hi, I'm new to this forum. I am very happy to find a place where I can read your stories and feeling related as well as supported. My daughter is 9 and was diagnosed with Epilepsy last week...

Created By: cyst&seizures | 02/2019 | 1 Comment

Hello,

I have a long, and somewhat extensive history with brain issues and seizures.

It starts back in 1989, my senior year in high school. Shortly after graduation I was found...

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