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Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: Iya | 10/2019 | 3 Comments

Hi! I am not sure what I have experienced. This happened three times this summer when I was waking up.

It felt like my brain got jammed in between awake and asleep state. It felt like I...

Created By: Struck90 | 10/2019 | 2 Comments

I have noticed the time between when I have episodes getting shorter. My first one was in 2011 and it was followed by a second one and hour after the first. I then went six years off meds and had...

Created By: LizLovesCheerios | 10/2019 | 3 Comments

Hi everyone, I'm Liz. I'm 14 years old and was diagnosed with generalized epilepsy when I was 3. I had about 1 seizure a year, and they were always febrile grand mal. However, when I was...

Created By: Dizzyagain | 09/2019 | 4 Comments

In all of my life (58yrs) I would never think this would happen to me...but it did over the weekend. I have been taking two different anti seizure medications for migraine headaches and my back...

Created By: Kmcdo | 09/2019 | 3 Comments

I recently had two seizures over the past several weeks, at the age of 31 with no previous ones that I am aware of. The first time I had to have stitches due to it causing a head injury, but the...

Created By: lkrause74 | 09/2019 | 1 Comment

My daughter just turned 21 and was diagnosed with petite mal (absence seizures) when she was about 2 years old. Shes been on Depakote sprinkles since about her diagnosis at 2. Shes been with a...

Created By: DAKEWLJAY | 09/2019 | 1 Comment

I had a dream that I was having a seizure a week or two ago, after I have awaken from the dream I had the shakes and I was sweating a lot. As if I actually had a seizure, I asked a friend of mine...

Created By: ivynguyen1980@yahoo.com | 09/2019 | 2 Comments

My son is almost 7 yrs old and he has one episode about 3yrs old then not happening again in April 2019 and then all the sudden on 9/18 he has 3 episodes in one day..... took him to ER they put...

Created By: Billc | 09/2019 | 1 Comment

I have been put on Vimpat. I have had two partial seizures. Is there a good chance I have epilepsy? I haven't seen the neurologist yet. I have a couple of weeks. I don't think there are...

Created By: meghaz98 | 09/2019 | 2 Comments

I am 21 years old, got diagnosed about 18 months ago. I suffer from tonic-clonic seizures and my trigger seems to be alcohol withdrawal. So the day after a heavy night drinking I will suffer from...

Created By: Tonnystark | 09/2019 | 2 Comments

I (19 f) have recently started to have seizures, I had my first seizure in June (which happened whilst I was swimming in the ocean may I add I’m lucky I didn’t drown lol) and I had my second...

Created By: Hammeroids4ever | 09/2019 | 2 Comments

Has anyone ever tried to make friends and were not successful? I have had epilepsy since ‘80 and absolutely no one ever tried being a good friend. I tried churches and was shut out after a seizure...

Created By: raenan1 | 08/2019 | 0 Comments

anyone tell me best meds with least side effects in children with noctural frontal lobe seizures?

Created By: raenan1 | 08/2019 | 1 Comment

my granddaughter just had her first seizure a few months ago. a second one a month later. she is 10. they are at night. she cones out of thrm with slurred speech and no control of limbs for a few...

Created By: Jeremycarew | 08/2019 | 5 Comments

Hello,
My name is jeremy, I was diagnosed with epilepsy back in 2016, I was also diagnosed with psychogenic ones as well, and now it looks like I have some new ones, i am getting some tests...

Created By: marwa_5d650e75d04ff | 08/2019 | 1 Comment

hello, I'm 20 years old and a sophomore in college I thought today I will hear good news but the doctor offered me another medication to treat the absence seizures so I'm on three now:...

Created By: Aishwarya Rao | 08/2019 | 3 Comments

To whomsoever concerned,
This is a story, the story I’d like to share with you, the story of me.
At times I wonder if I might get Alzheimer’s in the long run, so this letter is for me...

Created By: Bus Driver | 08/2019 | 7 Comments

Hello, my journey with epilepsy begins in 1963 when I was developed in the womb but I didn't know about it until 30/August/2019. I was born with an Arteriovenous Malformation (AVM) in the...

Created By: 123abc157 | 08/2019 | 2 Comments

Hey guys, I’m a 17 year old girl and I’ve been suffering from epilepsy since 6th grade. So I was around 11 years old . I had my first seizure take place at school during lunch when I was outside...

Created By: jwk232002_5d523e4cf1819 | 08/2019 | 3 Comments

I've had seizures, partial/petit mal mostly and some grand mal since age 9. I am almost 34. The famous Dr. Benjamin Carson removed a part of my brain, left temporal lobe, in 2004. Seizures...

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