Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: philip k | 05/2019 | 3 Comments

In year 2004, I started to have convulsive seizures at my freshman years in the university. After my second convulsive seizures within 5 days after the first one, I had done the EEG test, and then...

Created By: ItStrella | 05/2019 | 6 Comments

Hi, I'm Stella and I've been diagnosed with juvenile myoclonic epilepsy since 2017. I've had five seizure attacks and most of them were because of keppra that i used to take. My...

Created By: hayleigh sigle | 04/2019 | 8 Comments

Hello my name is Hayleigh, I am 15 years old and has had epilepsy since birth. I am 6 months siezure free! I really want to get to 1 year but I feel like it's never going to happen. I will...

Created By: Kotix | 04/2019 | 1 Comment

Hi from Russia. I'm 31 yo, had my first seizure 9 years ago in 2010 probably after stress (had two final university exams that day). And after that everything was fine till today. Recently I...

Created By: ZyStar161 | 04/2019 | 3 Comments

Hello...

I'm reaching out because I feel I have no support. To make a long story short... I'm 36 and after having a couple of seizures growing up (which resulted in testing and...

Created By: George1356 | 04/2019 | 3 Comments

HI I am on Lamictal, was 50 morn and 50 night. After a seizure, my neuro changed it to 75 morn and 75 night. Now after being dizzy, it is back to 50 morn and 75 night. Has anyone had anything...

Created By: Ramraghav | 04/2019 | 2 Comments

Dear all,

I am Raghav Dubey from India. I am 12 years old and a student in seventh grade. Since last year October, I have epilepsy seizures at least once in a month. The few things that my...

Created By: TayRenae | 04/2019 | 1 Comment

As a 21 year old pregnant epileptic, there's a lot of things you already worry about going into this crazy thing called adulthood. As a mother with general idiopathic epilepsy, this is not...

Created By: Ajp | 03/2019 | 6 Comments

Hi
I am not diagnosed with epilepsy as at the age of 51 I only had a first seizure 2 weeks ago and taken to hospital. I’m hoping just a one off as after having just one I cannot imagine how...

Created By: chele0785 | 03/2019 | 4 Comments

Hello. I woke up at 4am to feed my 3 month old, she finishes, put her back to bed and then I went to lay back down. I started to fall asleep, but like normal I have a hard time falling back asleep...

Created By: JustG | 03/2019 | 3 Comments

My epilepsy awareness technically started yesterday. When my neurologist, who was treating me for Non-specific Narcolepsy Type 2 for the past 6 months, finally viewed one of my home videos of what...

Created By: JustG | 03/2019 | 1 Comment

Continued from part 1

I find a new psychiatrist to see if there is anything else to try. She puts me on clonidine(ok) and sertraline (ok,for the Mild Depressive Disorder she identifies). I...

Created By: Mstar05 | 03/2019 | 3 Comments

My daughter just turned 14 and had her 1st seizure last month . The MRI shows she has cortical dyspasia which they have told us is a abnormally from utero .and they are suprised this is the first...

Created By: Firefly_5c87f63947fdd | 03/2019 | 2 Comments

Hello,

I'm having a down day. They don't happen often, but it seems I'm being tested in a big way. Before I get too far, please know that I am a positive person heart and I...

Created By: Flower Roberts | 03/2019 | 2 Comments

My daughter and I have been working on a book about her twenty-plus-year journey with epilepsy. It has stories about her life and "mama" advice from me. We need some input at this point...

Created By: DennyPadfoot | 03/2019 | 2 Comments

Hello recently for the past week I have started to have migraines and dizziness 24/7 and can barely get out of bed.

I have always mostly suffered from Focal Seizures and I only have to do a...

Created By: Pelisesmith | 03/2019 | 3 Comments

Hi all! My name is Paige and I have JME. I was diagnosed in 2012 at 14 years old. I’m now 20 and taking 300mg of lamortagine (generic lamictal) once daily. I remember what it was like for me, a...

Created By: GruGruxQueen | 03/2019 | 2 Comments

Hi I'm new here. I was first diagnosed with epilepsy in 2003 when I was 27. I have no history of seizures it just came out of the blue. At first I was having over 20 seizures of all types a...

Created By: shroberts | 03/2019 | 3 Comments

My name is Shaka, a 21 year old. I had my first seizure when I was 19 years old and was fast sleep when it happened. So there I was feeling tired, so I went to bed...that's all that is ever...

Created By: Ambersloves2 | 03/2019 | 2 Comments

I had a seizure at work on 2.7.19. I am a 29 yr old female, with no history of seizure... I was sitting at my desk doing a loan application for my customer, when next thing I know I'm laying...

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline