We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.
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We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.
Hi! I am not sure what I have experienced. This happened three times this summer when I was waking up.
It felt like my brain got jammed in between awake and asleep state. It felt like I...
I have noticed the time between when I have episodes getting shorter. My first one was in 2011 and it was followed by a second one and hour after the first. I then went six years off meds and had...
Hi everyone, I'm Liz. I'm 14 years old and was diagnosed with generalized epilepsy when I was 3. I had about 1 seizure a year, and they were always febrile grand mal. However, when I was...
In all of my life (58yrs) I would never think this would happen to me...but it did over the weekend. I have been taking two different anti seizure medications for migraine headaches and my back...
I recently had two seizures over the past several weeks, at the age of 31 with no previous ones that I am aware of. The first time I had to have stitches due to it causing a head injury, but the...
My daughter just turned 21 and was diagnosed with petite mal (absence seizures) when she was about 2 years old. Shes been on Depakote sprinkles since about her diagnosis at 2. Shes been with a...
I had a dream that I was having a seizure a week or two ago, after I have awaken from the dream I had the shakes and I was sweating a lot. As if I actually had a seizure, I asked a friend of mine...
My son is almost 7 yrs old and he has one episode about 3yrs old then not happening again in April 2019 and then all the sudden on 9/18 he has 3 episodes in one day..... took him to ER they put...
I have been put on Vimpat. I have had two partial seizures. Is there a good chance I have epilepsy? I haven't seen the neurologist yet. I have a couple of weeks. I don't think there are...
I am 21 years old, got diagnosed about 18 months ago. I suffer from tonic-clonic seizures and my trigger seems to be alcohol withdrawal. So the day after a heavy night drinking I will suffer from...
I (19 f) have recently started to have seizures, I had my first seizure in June (which happened whilst I was swimming in the ocean may I add I’m lucky I didn’t drown lol) and I had my second...
Has anyone ever tried to make friends and were not successful? I have had epilepsy since ‘80 and absolutely no one ever tried being a good friend. I tried churches and was shut out after a seizure...
anyone tell me best meds with least side effects in children with noctural frontal lobe seizures?
my granddaughter just had her first seizure a few months ago. a second one a month later. she is 10. they are at night. she cones out of thrm with slurred speech and no control of limbs for a few...
Hello,
My name is jeremy, I was diagnosed with epilepsy back in 2016, I was also diagnosed with psychogenic ones as well, and now it looks like I have some new ones, i am getting some tests...
hello, I'm 20 years old and a sophomore in college I thought today I will hear good news but the doctor offered me another medication to treat the absence seizures so I'm on three now:...
To whomsoever concerned,
This is a story, the story I’d like to share with you, the story of me.
At times I wonder if I might get Alzheimer’s in the long run, so this letter is for me...
Hello, my journey with epilepsy begins in 1963 when I was developed in the womb but I didn't know about it until 30/August/2019. I was born with an Arteriovenous Malformation (AVM) in the...
Hey guys, I’m a 17 year old girl and I’ve been suffering from epilepsy since 6th grade. So I was around 11 years old . I had my first seizure take place at school during lunch when I was outside...
I've had seizures, partial/petit mal mostly and some grand mal since age 9. I am almost 34. The famous Dr. Benjamin Carson removed a part of my brain, left temporal lobe, in 2004. Seizures...