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We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.
Hi! I am not sure what I have experienced. This happened three times this summer when I was waking up.
It felt like my brain got jammed in between awake and asleep state. It felt like I...
I have noticed the time between when I have episodes getting shorter. My first one was in 2011 and it was followed by a second one and hour after the first. I then went six years off meds and had...
Hi everyone, I'm Liz. I'm 14 years old and was diagnosed with generalized epilepsy when I was 3. I had about 1 seizure a year, and they were always febrile grand mal. However, when I was...
In all of my life (58yrs) I would never think this would happen to me...but it did over the weekend. I have been taking two different anti seizure medications for migraine headaches and my back...
I recently had two seizures over the past several weeks, at the age of 31 with no previous ones that I am aware of. The first time I had to have stitches due to it causing a head injury, but the...
My daughter just turned 21 and was diagnosed with petite mal (absence seizures) when she was about 2 years old. Shes been on Depakote sprinkles since about her diagnosis at 2. Shes been with a...
I had a dream that I was having a seizure a week or two ago, after I have awaken from the dream I had the shakes and I was sweating a lot. As if I actually had a seizure, I asked a friend of mine...
My son is almost 7 yrs old and he has one episode about 3yrs old then not happening again in April 2019 and then all the sudden on 9/18 he has 3 episodes in one day..... took him to ER they put...
I have been put on Vimpat. I have had two partial seizures. Is there a good chance I have epilepsy? I haven't seen the neurologist yet. I have a couple of weeks. I don't think there are...
I am 21 years old, got diagnosed about 18 months ago. I suffer from tonic-clonic seizures and my trigger seems to be alcohol withdrawal. So the day after a heavy night drinking I will suffer from...
I (19 f) have recently started to have seizures, I had my first seizure in June (which happened whilst I was swimming in the ocean may I add I’m lucky I didn’t drown lol) and I had my second...
Has anyone ever tried to make friends and were not successful? I have had epilepsy since ‘80 and absolutely no one ever tried being a good friend. I tried churches and was shut out after a seizure...
anyone tell me best meds with least side effects in children with noctural frontal lobe seizures?
my granddaughter just had her first seizure a few months ago. a second one a month later. she is 10. they are at night. she cones out of thrm with slurred speech and no control of limbs for a few...
Hello,
My name is jeremy, I was diagnosed with epilepsy back in 2016, I was also diagnosed with psychogenic ones as well, and now it looks like I have some new ones, i am getting some tests...
hello, I'm 20 years old and a sophomore in college I thought today I will hear good news but the doctor offered me another medication to treat the absence seizures so I'm on three now:...
To whomsoever concerned,
This is a story, the story I’d like to share with you, the story of me.
At times I wonder if I might get Alzheimer’s in the long run, so this letter is for me...
Hello, my journey with epilepsy begins in 1963 when I was developed in the womb but I didn't know about it until 30/August/2019. I was born with an Arteriovenous Malformation (AVM) in the...
Hey guys, I’m a 17 year old girl and I’ve been suffering from epilepsy since 6th grade. So I was around 11 years old . I had my first seizure take place at school during lunch when I was outside...
I've had seizures, partial/petit mal mostly and some grand mal since age 9. I am almost 34. The famous Dr. Benjamin Carson removed a part of my brain, left temporal lobe, in 2004. Seizures...
The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.
