Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Topic: Share Your Story

Created By: raenan1 | 08/2019 | 1 Comment

my granddaughter just had her first seizure a few months ago. a second one a month later. she is 10. they are at night. she cones out of thrm with slurred speech and no control of limbs for a few...

Created By: Jeremycarew | 08/2019 | 5 Comments

Hello,
My name is jeremy, I was diagnosed with epilepsy back in 2016, I was also diagnosed with psychogenic ones as well, and now it looks like I have some new ones, i am getting some tests...

Created By: marwa_5d650e75d04ff | 08/2019 | 1 Comment

hello, I'm 20 years old and a sophomore in college I thought today I will hear good news but the doctor offered me another medication to treat the absence seizures so I'm on three now:...

Created By: Aishwarya Rao | 08/2019 | 3 Comments

To whomsoever concerned,
This is a story, the story I’d like to share with you, the story of me.
At times I wonder if I might get Alzheimer’s in the long run, so this letter is for me...

Created By: Bus Driver | 08/2019 | 7 Comments

Hello, my journey with epilepsy begins in 1963 when I was developed in the womb but I didn't know about it until 30/August/2019. I was born with an Arteriovenous Malformation (AVM) in the...

Created By: 123abc157 | 08/2019 | 2 Comments

Hey guys, I’m a 17 year old girl and I’ve been suffering from epilepsy since 6th grade. So I was around 11 years old . I had my first seizure take place at school during lunch when I was outside...

Created By: jwk232002_5d523e4cf1819 | 08/2019 | 3 Comments

I've had seizures, partial/petit mal mostly and some grand mal since age 9. I am almost 34. The famous Dr. Benjamin Carson removed a part of my brain, left temporal lobe, in 2004. Seizures...

Created By: mistermattm77 | 08/2019 | 2 Comments

Almost 2 weeks ago, I had my first seizure at 41, while driving home from work. I wrecked my car and was taken to the emergency room(Where I later had another seizure) and stayed at the hospital...

Created By: Rex_5d4e7c4c7a38b | 08/2019 | 2 Comments

Hi I’m after a bit of advice or wondering whether anybody has shared a similar experience, my nephew is currently in hospital he is nearly 4 years old and about a week ago he suffered a number of...

Created By: beth_teacher | 07/2019 | 1 Comment

I had my first seizure before the age of one. I had 2 more grand mal seizures by the age of 5 and no one knew why. I don't know if any of you have ever heard of LeBonheur Children's...

Created By: April_Aussie90 | 07/2019 | 1 Comment

Hi everyone
Just wanted to get a sort of view with anyone who goes to the gym that uses protein for weight loss while eating healthy & working out..
I'm 29yrs old I'm...

Created By: Ganja | 07/2019 | 1 Comment

About 3 months ago i noticed i was getting migraines and around the same time my wife noticed my first siezure in my sleep. This could have been going on for longer but since i do not remember my...

Created By: Singsqueen | 07/2019 | 3 Comments

surgery was 18mo ago after 8 years of seizures (grand mal, nocturnal, complex partial). surgery was a must due to seizures of course, but the memory loss had started in small bits that we were...

Created By: garyhoward234 | 07/2019 | 1 Comment

So I go to my primary care Dr, I go in for memory loss and feared dementia. So blood tests and other written tests he doubted it was dementia, he sends me to a neurologist. MRI and such CT scan...

Created By: timnovotny | 07/2019 | 1 Comment

I had a 15 minute grand maul seizure and went into status epilepticus in front of my 9 year old daughter. Very scary. It was my first seizure that lasted that long.

Created By: timnovotny | 07/2019 | 4 Comments

I wanted to bring up CBD. I had been diagnosed with epilepsy in 2015, and suffered through many seizures (while on medication) before discovering the benefits of CBD in 2018. I had a 15 minute...

Created By: Georgie123 | 07/2019 | 1 Comment

I had childhood epilepsy and stopped having seizures when I was around 11 years old. I am now 22. I was diagnosed with 3 different types: petit mal, grand mal and drop.

I haven't had a...

Created By: Phelpsyjnr | 07/2019 | 1 Comment

Hi,

Looking for some advice to see if anyone else has had a similar problem to me. I was diagnosed with Epilepsy in 2007 and after many years of trial and error, my seizures were brought...

Created By: CamRead | 07/2019 | 2 Comments

I started having seizures in 2017 and I’ve had only had three seizure on my second one I almost died and on my third one on New Year’s Day this year. Ever since I’ve been diagnosed with anxiety...

Created By: Sorcron11 | 07/2019 | 2 Comments

My name is Rich and I juvenile mayoclonic epilepsy, or however it is spelled lol. I started having seizures about three years ago at the age of 22. Ever since then I’ve had some major emotional...

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