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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: Mary Ruth Pursselley | 02/2016 | 2 Comments

Hello! My name is Mary, and I'm an author of speculative fiction - fantasy, sci-fi, steampunk, etc. My current work in progress is near-future science fiction...and one of my main characters has...

Created By: epihelp | 02/2016 | 2 Comments

The second Monday in February is International Epilepsy Day. Please share your story, offer words of wisdom, or message for others living with epilepsy. Stay tuned to the Epilepsy Foundation's...

Created By: debbie eagle | 01/2016 | 2 Comments

My husband had brain hemorrhage in 2010 which he take alot of medication also resulted in memory loss, very confused so unable to work. He has just started to have seizures which are lasing 2-3...

Created By: Bananasyrupx | 01/2016 | 2 Comments

 

Hi my name is Sarah. This is long one so be prepared. 

My journey starts at age 14, I was in highschool and things weren't looking too good.

The public health system had...

Created By: michael grzybowski | 01/2016 | 0 Comments

A life with seizures is nothing to enjoy, for since age 4 they have been affecting my life in ways that sometimes made dying seem better than having them. Not being able to drive, look at some...

Created By: R | 12/2015 | 0 Comments

I was 17 when i was diagnosed with Photosenstive epilpesy, and well it rocked my world pretty badly, it took some time to deal with it all, but i've never changed my goals or dreams because of it...

Created By: Rshields388 | 12/2015 | 9 Comments

Title says it all. I have had such a hard time adjusting to my once in awhile Seizure disorder, and I'll never forget the day I was told my this asshole doctor that I couldn't drive to it. I call...

Created By: Esther Garcia | 12/2015 | 0 Comments

Hi all. I work with Elephant Productions and we are creating a documentary about epilepsy for the University of Texas Biomedical Sciences students. The goal of the documentary is to give them a...

Created By: whoru | 12/2015 | 0 Comments

Last June, my son have his first seizure, and getting more frequent from monthly, weekly to daily. The worst scenerio is having 5 seizures a day and vomitting alot afterward. Doctor has diagnose...

Created By: Daisy1789 | 11/2015 | 4 Comments

Hi all,

 During this month of November I have really been putting myself out there :)

First, I didn't know how to handle raising awareness alone without putting pressure on people or...

Created By: jameswhited | 11/2015 | 3 Comments

Hi, I'm 49 yo and have been diagnosed with left temporal lobe epilepsy.  I have a strong problem with short term memory but long term memory I can remember movies I've watched over the years word...

Created By: Dari | 11/2015 | 1 Comment

Hello!

 

This account was created by my son as i want to ask few questions regarding my daughter.

Sorry for my bad English.

She suffers from epilepsy (General...

Created By: seatownep | 11/2015 | 0 Comments

I'm an epileptic and a kick as engineer for one of the top engineering companies in the world! I've had epilepsy since the 9th grade and despite it causing some hiccups along the way I graduated...

Created By: Twinkle_60 | 11/2015 | 1 Comment

hi i have a question, i am on levetiracetam 500 mg 2 times a day since last 5 years. But recently i have noticed that i get tired too easily and i just want to sleep all day(lol), so is it normal...

Created By: Roadcan | 11/2015 | 1 Comment

Hello,

 

I am an avid cyclist and will like to connect with other cyclist suffering from epilepsy to share/learn sfae techniques etc.  I am back in the saddle after 6 months and I...

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