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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: Courtneyreidenbach | 06/2017 | 1 Comment

Hi, ive recently been diaagnosed with epilepsy, my first bout being life threatening se. I was driving on the thruway, woke up a week later strapped to a bed in icu. I thought i had only had the...

Created By: ynot | 05/2017 | 5 Comments

Hello, I can't believe how this is such an epidemic, until this hits home and it has our family traumatized right now, but I have to say we feel fortunate because so many people seem to have...

Created By: Amany | 05/2017 | 6 Comments

I need help ,
My son is 11 years old now, he had febrile convulsions when he was 3 years old then another time when he was 6 years, the last time was from 6 months ago and we discovered by...

Created By: jenn1028 | 05/2017 | 3 Comments

So it will be 5 years in August that I found out I had seizures. I was 6 months pregnant with my second daughter when I had two seizures within 3 hours. I had my first one was I was 19 my doctor...

Created By: alaster87 | 02/2017 | 1 Comment

I have always wonder how it was possible for myself to have trigger my own seizures of as a kid with out any way of controlling myself from doing it, it wasn't till I was 17 when I decided to...

Created By: joebo90 | 01/2017 | 3 Comments

Hello,

I want to share my story on the epilepsy I'm currently suffering from. I am your average 26 years old male.

First of all let me start with the very first one I had. It...

Created By: mad_scientist | 01/2017 | 0 Comments

This is an essay that I wrote for an application to The University of Chicago telling my story of a life with diabetes and ultimately my battle with seizures. I will include the prompt that I...

Created By: Lauren1234 | 12/2016 | 1 Comment

The time machine I feel is always lurking around every corner
Even though it’s followed me for so long it still feels like a foreigner

When I was young it would only come at night...

Created By: kez61 | 12/2016 | 1 Comment

Topirimate/Suicidal thoughts
Topic:
Fundraising and Awareness
I was put on Topirimate, as I have a neck condition called bilateral cervical stenosis. I was on it for a few months...

Created By: Burwell99 | 11/2016 | 1 Comment

I am a 35 year old male with epilepsy. I had my first seizure at age 2 or 3. A seizure, which forced me to be transported to Good Samaritan Hospital in Kearney, NE. We tried numerous doctors...

Created By: redsonja81 | 11/2016 | 0 Comments

For over two years I've been having to go through the gauntlet of testing, hospitals, multiple doctors, etc.... All the medical "professionals" I have dealt with so far don't...

Created By: jcorral02 | 08/2016 | 0 Comments

Hi everyone, It's been a while since I participated here in the forum but I wanted to share something with you guys. I ran into this product that helps improve your memory and your study...

Created By: sav_3 | 08/2016 | 2 Comments

Hey everyone!
My name is Savanna and I'm 20 years old. I was diagnosed with petit mal seizures when I was 15 years old and it's been a long journey. Taking it back to 15, I always...

Created By: pete27car8vno | 07/2016 | 0 Comments

Are u ready for this? I had 1st sez 22years ago they did all the tests, nothing found but diagnosed with temp'lobe ep'. Tried all the med's but no good most sez happened at the...

Created By: hayleyn | 07/2016 | 0 Comments

Hi Everybody!

My name is Hayley, I'm 22 and I am diagnosed with temporal lobe epilepsy.
In 2012, I had made myself home at my first few weeks at Oklahoma State University. I had...

Created By: Erica77 | 06/2016 | 0 Comments

Hello! My name is Erica, I’m 28-years-old, and I have periventricular heterotopia, a rare form of epilepsy. (Basically, while I was developing in the womb, some pieces of my brain didn’t move all...

Created By: lee880 | 06/2016 | 0 Comments

Hello everyone, I wasn't born with seizures, mine didn't start gradually like most, there were no major warnings like most, they just came like a thief in the night to take over my life...

Created By: espressoaddict | 06/2016 | 3 Comments

(Long post!) My life was going perfectly - I graduated undergrad in 3 years with honors; was planning on taking a year off to teach English abroad and travel; and then I was going to go to law...

Created By: byronfab | 06/2016 | 0 Comments

My name is Byron and I'm new to this forum, I'm 22 now and had epilepsy since roughly 14 years old. After being hospitalized 9 times, countless medications, doctor visits, meeting 2...

Created By: PhishPhanPhil | 06/2016 | 0 Comments

I have a very refractory seizure disorder which I've had since I was 25, I'm 34 now. I was having an average of a seizure every four to five weeks. My neurologist had tried every...

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