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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: MrHopeful | 10/2017 | 1 Comment

I was born will epilepsy mother noticed me steering into space at 18 months old. As I got older the seizures continued to get worse. At age 40 I had brain surgery. Few years before the surgery I...

Created By: Betty1234_59b9b6cfa7249 | 10/2017 | 2 Comments

A few days ago I was watching TV and I reached down to the floor to pick up the TV remote and I couldn’t move. I was unable to move for around 10 minutes before I had a grand mal seizure. Has...

Created By: antinoos44 | 10/2017 | 3 Comments

Hello everybody
my name is Benjamin i am french (i living in france), i am fiancé with a man who living in Louisiana.
He is new teacher in Junior School and In beguin on the week ha...

Created By: keepra | 10/2017 | 17 Comments

My 18-year-old brother had a grand mal seizure 2 days ago during his sleep. I believe it was only one episode (he did not have one after another), for about a minute and it took him approx. 10...

Created By: jisraelep | 10/2017 | 2 Comments

Looking for information from any individuals who had an RNS implant. When did you have it and are you satisfied?

Created By: jisraelep | 10/2017 | 2 Comments

I am interested in gathering information from anyone who has had an RNS implant to stop seizures. What has been your experience, good bad or indifferent. Thank you very much. Jan

Created By: dsierra | 10/2017 | 4 Comments

I just started having issues with having seizures about a month and a half ago and since then things have been going crazy. My first issue was when i passed out in my truck and my boyfriend tried...

Created By: Acain2121 | 10/2017 | 5 Comments

I am beyond sad that my son is going through this. We got the call from his girlfriend he was living with at the time that he was having a seizure we found out he had also had 6 beers her dad have...

Created By: Brandon Derek Rogers | 10/2017 | 3 Comments

I'm a 48 yr. man who has had gran mal seizures since 10 yrs. old. After an EEG by a neurologist I was told I had epilepsy. Frontal lobe damage. How and from where only God himself knows. As...

Created By: neruda | 10/2017 | 4 Comments

I'm a mother to a 23 yr old, he was a 6, 5 month premature baby. After the initial 3 ICU months, I thought the heartache was over, I was finally bringing home my baby and only child. Little...

Created By: Jdixon | 10/2017 | 2 Comments

Hello, looking for chats that I get speak with for additional help. I have stared have seizures in 2015 they are have always been during my sleep i would bite my tongue and release myself almost...

Created By: Betty1234_59b9b6cfa7249 | 10/2017 | 3 Comments

I was on the phone when all of a sudden this feeling of something awful was going to happen washed over me. The next thing I remember was waking up in hospital and I was told I’d had a tonic...

Created By: Rob1234 | 10/2017 | 2 Comments

Hello, first Post.
About 5 years ago I first had a major seizure (where I was unconscious) after withdrawing from alcohol one day. A few months later and I had another seizure even though I...

Created By: T2roseburry | 10/2017 | 4 Comments

I've had a sezuire when I was two, four, and eight. Each time I went and saw a neurologist. They all told me that if I didn't have another one in six months, I wouldn't have one for...

Created By: hvicwa | 10/2017 | 3 Comments

I just found out less than a week ago that I am epileptic. I know nothing about it I have my first seizure about two months ago. Me and my daughter were out brush hogging on the tractor and I went...

Created By: Martin_59ce95a6ea9df | 09/2017 | 6 Comments

Hey there fellas. My wife has Epilepsy, diagnosed with complex partial seizures since she was four years old. She is now 24. The last medication she was taking were
ONFI - 2x5mg
...

Created By: Sambla007 | 09/2017 | 3 Comments

I was diagnosed with epilepsy at the age of 6 months and been on medication as far as I can remember. I am now 44. I suffered with it really badly could have up to 12 seizures a day. i had...

Created By: arriamarcella | 09/2017 | 3 Comments

Hello everyone. I am new here and I'd like to share the story of my girlfriend who is suffering from epilepsy since she was 5 years old.
After taking Depakote, she was temporarily cured...

Created By: Lilyyy98 | 09/2017 | 3 Comments

I was never once healthy only I wish I was , not going ago a few days it was I stoped breathing couldn't talk right after multiple seizures they say the only thing for my seizures is if I...

Created By: BrianDellerman | 09/2017 | 3 Comments

I am a 32 year old male who has lived a pretty healthy life without seizures up until I received an inguinal hernia operation. I had complications after having the surgery done, with the mention...

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