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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: itsdavid_12 | 11/2017 | 1 Comment

Hey so I have been diagnosed with gran mild seizures for over a year now. My most recent one was perhaps the scariest. Me and my friends decided to take a trip to Great America and what was...

Created By: Am17 | 11/2017 | 6 Comments

My step daughter is eight years old and had her first seizure around a year ago. We witnessed her first seizure Dr says a prolonged absence but I’m not sold on that it lasted approx 10 min with...

Created By: Nikkilew07 | 11/2017 | 2 Comments

I haven't been diagnosed yet but i will begin my neurology referral soon.

Back story- I have been a VERY lucid dreamer since i was about 15 (i'm now 29). I've had sleep...

Created By: Pediatricnursebrooke | 11/2017 | 2 Comments

I am 25 years old now, I have had epilepsy since I was 8 years old. I slipped and fell on black ice, and hit my head on the concrete. That was only the beginning to the ridiculousness. I was...

Created By: Ashleigh.2747 | 11/2017 | 6 Comments

Can anyone describe what an absence seizure feels like? I've been wondering if they are something I experience. I'm 20 now but my entire life I would sometimes suddenly feel far away....

Created By: barkskay | 11/2017 | 2 Comments

I don't know If I should try to work or wait on Social Security. I was diagnosed with seizure disorder in 1983. I have always worked fulltime & went to college. I did graduate with my...

Created By: AnamariaKms | 11/2017 | 3 Comments

I was at my friends house, and i haven't smoked at all that day. We went on a walk to a trail and i only had half a bowl of weed, which is a normal amount for me due to having asthma. I...

Created By: atenterprisesllc@gmail.com | 11/2017 | 1 Comment

Hello,
My husband is a fairly healthy 45 year old male he does suffer from a mental illness but back in January of this year he started having seizures he woke up very confused and I took...

Created By: Karsen Simmons | 11/2017 | 2 Comments

So I have JME and have seizures when I'm sleeping. I don't wake up after them, but in the morning I will have realized that I had a seizure because I had peed my pants/bed. Sometimes the...

Created By: Karsen Simmons | 11/2017 | 0 Comments

So I have JME and have seizures when I'm sleeping. I don't wake up after them, but in the morning I will have realized that I had a seizure because I had peed my pants/bed. Sometimes the...

Created By: Nannaofjoy1 | 11/2017 | 1 Comment

Nannaofjoy1
What to do about nighttime seizures & if it’s always related to bed wetting in adults
have an 18-year-old daughter and she had her first grand maul seizure and...

Created By: scotta15 | 10/2017 | 4 Comments

Would anyone have any experience with seizures caused by genetics? I inherited my seizures from my father and he has been dealing with his seizures for quite a long time. Sometimes thinking meds...

Created By: Emily.Lade | 10/2017 | 1 Comment

My name’s Emily and I’m 17. As a small child I suffered from Tonic Clonic seizures. Having those types of seizures at such a young age was tough, I was tested with about every known medication...

Created By: cs | 10/2017 | 3 Comments

Hi there, I'm new to these forums, and was hoping someone could give me their opinion on some possible seizure activity that I may have been experiencing. I'm in my early 30's....

Created By: lyn_B | 10/2017 | 5 Comments

Sorry in advance about the length of this post...But I need help.
I was in a car accident and had a TBI. I was diagnosed with having seizures shortly after. I have had an EEG and it was...

Created By: MKiger33 | 10/2017 | 3 Comments

I am here to tell a story, this is my personal, vulerable, and honest endeavour with my radical teacher epilepsy. But to also propose a question, "Is it Possible?". To tell my full story...

Created By: Sie/Simon | 10/2017 | 13 Comments

To help with information and experience of the condition and how to manage a life so we still feel part of it :-)

Created By: Momma Moonie | 10/2017 | 1 Comment

Been going to the same Pub and I don't drink any achocol beverages at all always order me a sweet tea I have sudo seizures I had one the night of October 6,Th 2017 and went back Friday...

Created By: EddysMom | 10/2017 | 12 Comments

Our 28yr old son passed away on Oct 3 2017. Cause of death listed as cardiac arrest due to seizure. Never Never in a million years did we think his seizures would take him from us. Eddy was born...

Created By: Sara1111 | 10/2017 | 3 Comments

Hello! I'm writing from Romania so please excuse my writing mistakes. My daughter was diagnosed with PS when she was 2 years and 10 months. Now she is 4 years and 4 months. Her first seizure...

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