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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: Libradiva29 | 12/2017 | 2 Comments

I have a 7 year old son who has had epilepsy since he was a day old. He also has cerebal palsy as well as being developmentally delayed.. As I wrote this we are in children's hospital of...

Created By: vczaia47@gmail.com | 12/2017 | 1 Comment

I have idiopathic generalized Epilepsy as well as Juvenile Myclonic Epilepsy. I wanted to be more than someone with Epilepsy. I decided to get my degree. I went to college and earned my degree....

Created By: SeizingLisa | 12/2017 | 3 Comments

What is the recovery like after the surgery? I heard it’s bad headache pain afterwards, which I would understand.

Created By: Deepak299 | 12/2017 | 1 Comment

I've been having partial seizures since I was a child. Don't remember the exact date, but I'm assuming I hit my head at some point. I only recently went to a neurologist at age 20 (...

Created By: Mothersof2 | 12/2017 | 1 Comment

Hello my name is Dianna.
.New to all this , I do have epilepsy had it since I was 13. I am a mother of two young boys 6 & 2. Now never been married but just got separated from now my...

Created By: wolfman1 | 12/2017 | 8 Comments

wolfman1
12:09PMOkay here goes. my daughter is 21 was diagnosed when 6 with absence seizures. put on depakote till she was 20 years old. School was a nightmare etc no quality of life . last...

Created By: Brain shivers | 11/2017 | 10 Comments

Hello I am new here I have not been diagnosed with epilepsy however I have these things I call brain shivers basically I feel pressure building in the back of my head and then chills even if it...

Created By: Mountain Mike | 11/2017 | 2 Comments

My mother had her first seizure in 1983 at the age of 38. To this day she does not know what caused it so late in life but she suspects that it's because when she was 6 years old, her cousin...

Hi
Created By: alimeeabey | 11/2017 | 1 Comment

I am 45 years old from San Jose, CA.

Created By: HippyRedhead92 | 11/2017 | 3 Comments

Hello friends. My name is Tyler Im 25 and I am from Hot Springs Arkansas. I just wanted to let out some of my personal events and vent a little due to some depression issues. I have had epilepsy...

Created By: Pavel | 11/2017 | 1 Comment

Hello!
I want that medical personal and others give seizure safety reminder card with size of business card or send mail about it for parents or patients. How about it in US? I'm from...

Created By: reh | 11/2017 | 3 Comments

Hello! This is my first post on here :) My boyfriend is currently undergoing tests for suspected epilepsy and I'm looking for similar stories for advice & general support (as my...

Created By: monica92 | 11/2017 | 6 Comments

I'm 25 and had my first ever grand mal/tonic clonic seizure on November 12th. I spent 3 days in the hospital because the seizure itself lasted for over 5 minutes - though I have no...

Created By: Bailey18 | 11/2017 | 1 Comment

My seizures began when I was 13 and at that point the neurologists had no clue what caused them. I was having everything from grand mal to simple complex. Finally we found a much better doctor and...

Created By: pete27car8vno | 11/2017 | 0 Comments

I've always thought Doc's can't/dare not tell us everything! As an ex electronics engineer I know that electric current flow is influenced by magnetism, we all know the brain is...

Created By: Woden1809 | 11/2017 | 0 Comments

Hi, everyone. I hope you can help me identify some seizure-type episodes I had as a child.

I have experienced several grand mal seizures as an adult due to brain injury as a 15-year-old;...

Created By: unduki_5a131bd9c89e6 | 11/2017 | 1 Comment

I've known it was something all my life but my mild form of epilepsy didn't get really checked out until I was in my 30's and the seizures began to express themselves in migraines...

Created By: PhiaLoren38 | 11/2017 | 4 Comments

my name is phia, i am 20 years old, but was diagnosed with epilepsy when i was 12 years old.
epilepsy changed my world around. if i could tell my whole story, id be typing for hours, days,...

Created By: ElianaLM | 11/2017 | 7 Comments

Hi. This is my first time posting on this forum! I'm so happy to have found this community, I'm curious about what your story is.

Created By: ElianaLM | 11/2017 | 0 Comments

Hi. This is my first time posting on this forum! I'm so happy to have found this community, I'm curious about what your story is.

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