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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: MISSING U | 02/2018 | 4 Comments

Good night I have a burning question, my cousin age 33 died age from a seizure face down in her bed, just this past Sunday, blood on pillow urine on bed ...she was diagnosed with epilepsy maybe 3...

Created By: Bdisco | 02/2018 | 2 Comments

New at this, my daughter has had a few seizures just before and after being diagnosed with mono. She is currently on keppra. We have just taken her off of zonisamide due to the cognitive issues...

Created By: Loguecade | 02/2018 | 2 Comments

Hi, I'm new to this. Anyways, I was diagnosed with epilepsy when I was 16, i am 28 now. I was going into work the one morning over the summer, and crashed my truck into a tree. We thought I...

Created By: dee15 | 02/2018 | 1 Comment

Hi everyone, I am new on here but sadly not new to living life with epilepsy. I had my first seizure at the age of 11. I was diagnosed as having grand mal seizures. I am now 37 and I have been...

Created By: crazycurlyfrys@gmail.com | 02/2018 | 3 Comments

My mother-in-law has seizures every few months were she lays in bed shaking her head arms and legs. then she passes out right after and is still for a few seconds and Then she gasps for air with...

Created By: Abby1 | 02/2018 | 1 Comment

Hi all,

Unfortunately my husband had been diagnosed with epilepsy since late teens. Ten years down the line he's been doing really well for the last 6 months. This is mainly due to the...

Created By: BassGirl | 01/2018 | 1 Comment

Hi Everyone,

This is my first time writing about my experience with seizures. Growing up I never had signs of epilepsy and never thought that something other than epilepsy can cause you to...

Created By: Imme412 | 01/2018 | 0 Comments

I am 31 years old and was in an accident in my way home from Germany, I was a paratrooper. I don't remember much about what happened, just stories I've been told. That's somewhat...

Created By: poppy123 | 01/2018 | 1 Comment

I had 2 seizures in 2017, it transpires i had very low iron, two doses of intravenous iron and i feel so much better, but I've lost my driving license. Do I have to wait the 12 months, no...

Created By: CrazyMikey | 01/2018 | 4 Comments

Hello Everyone! My name is Mike! I've had Epilepsy for about 23 years now, since I was 10 and a half years old. We don't completely know what caused me to have seizures but we have a...

Created By: Mcmullenjessica | 01/2018 | 1 Comment

Hello, my daughter had her first seizure at 9 and her second at the age of 13! I am so confused because her first eeg shows some abnormal activity and her latest eeg shows nothing, but she still...

Created By: ramsha | 01/2018 | 1 Comment

Okay I'm 19 years old. In 2011, I first recognised this speech arrest in me. It's like when I read or study, I feel something abnormal with mouth muscles of left side which doesn't...

Created By: mfultano | 01/2018 | 1 Comment

I am a 30 year old woman living with epilepsy. Recently I have had a few other health issues as a result of my epilepsy which has increased my anxiety. I have started going to therapy to help put...

Created By: Jason A. Kern | 01/2018 | 3 Comments

Hello, my name is Jason Kern. I am a 10th-grade student at Clark Montessori Jr. & Sr. High School.

I had a sister by the name of Kayla who was born with Epilepsy caused by brain...

Created By: FootballandEpilepsy | 01/2018 | 3 Comments

I have been living with epilepsy since age 16. I collapsed following a football workout and woke up in the hospital that afternoon learning I had a seizure. I am now 28. I have been on many...

Created By: SilverSerfer | 01/2018 | 0 Comments

Hello I was doing a little research online and came across this sight and thought I should share my story. As a infant I suffered from heat stroke of 105 degrees. When the paramedics arrived they...

Created By: Jullia | 01/2018 | 2 Comments

My son has a experienced some major traumatic events in his life including being stabbed five times then two years later he was shot in the chest and was in a coma for a week and a half. About two...

Created By: javiecholson188 | 01/2018 | 0 Comments

Hello everyone I am a new Member. Because not understand the activity forum page for how people are looking forward to help. Thanks

Created By: wondering boy 94 | 01/2018 | 0 Comments

I believe when i was 12 a goal post fell on my head, not a full size one but a 7 a side one. I believe this was the cause of my epilepsy but the thing is that it didn't start immediately it...

Created By: debsquared | 01/2018 | 2 Comments

When I was an infant my parents found me in my crib having some type of seizure. It was not diagnosed as epilepsy. At the age of 16, I was in a major car accident. There was a lot of damage to my...

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