We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.
Learn more about #DareTo Go the Distance
We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.
Hi
I've noticed over the last few weeks that l am getting sudden drops while out walking. Well l used to get the odd one, but they seem to be happening a bit more often now. I am 59...
Hey! My name is Ella, and I'm 15 years old. I started having seizures when I was 9 months old. They were only brief abscences, but I was never fully diagnosed, as my EEG was clear. When I was...
I was diagnosed with epilepsy since the age of 8. I use to get petti mal which is a starring spell and grand mal which is like holding a live electric wire. Before that, I get auras since the age...
Tried to share my story, but "sorry invalid content" was all I could get from it.
I'll share those upsides when I figure out how to enter a valid content.
I am 28 this year. I have epilepsy since I am 23 years old. At the point of time, I am taking my Bachelor's degree. Before have epilepsy, I was able to drive since I am 19, attended and clear...
I am moving. I don't know people around me. Paranoid Mom wants me to have alert for falls. They are ugly. I like pretty jewelry. Advice? Brand? Anything?
I had a problem with my medic alert chain breaking. It got expensive and the things were ugly. I solved the problem with a tattoo and it has helped me so much. I never thought I would get a tattoo...
Hi! I am not sure what I have experienced. This happened three times this summer when I was waking up.
It felt like my brain got jammed in between awake and asleep state. It felt like I...
I have noticed the time between when I have episodes getting shorter. My first one was in 2011 and it was followed by a second one and hour after the first. I then went six years off meds and had...
Hi everyone, I'm Liz. I'm 14 years old and was diagnosed with generalized epilepsy when I was 3. I had about 1 seizure a year, and they were always febrile grand mal. However, when I was...
In all of my life (58yrs) I would never think this would happen to me...but it did over the weekend. I have been taking two different anti seizure medications for migraine headaches and my back...
I recently had two seizures over the past several weeks, at the age of 31 with no previous ones that I am aware of. The first time I had to have stitches due to it causing a head injury, but the...
My daughter just turned 21 and was diagnosed with petite mal (absence seizures) when she was about 2 years old. Shes been on Depakote sprinkles since about her diagnosis at 2. Shes been with a...
I had a dream that I was having a seizure a week or two ago, after I have awaken from the dream I had the shakes and I was sweating a lot. As if I actually had a seizure, I asked a friend of mine...
My son is almost 7 yrs old and he has one episode about 3yrs old then not happening again in April 2019 and then all the sudden on 9/18 he has 3 episodes in one day..... took him to ER they put...
I have been put on Vimpat. I have had two partial seizures. Is there a good chance I have epilepsy? I haven't seen the neurologist yet. I have a couple of weeks. I don't think there are...
I am 21 years old, got diagnosed about 18 months ago. I suffer from tonic-clonic seizures and my trigger seems to be alcohol withdrawal. So the day after a heavy night drinking I will suffer from...
I (19 f) have recently started to have seizures, I had my first seizure in June (which happened whilst I was swimming in the ocean may I add I’m lucky I didn’t drown lol) and I had my second...
Has anyone ever tried to make friends and were not successful? I have had epilepsy since ‘80 and absolutely no one ever tried being a good friend. I tried churches and was shut out after a seizure...
anyone tell me best meds with least side effects in children with noctural frontal lobe seizures?
The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.
