We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.
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We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.
Hi there im new to here and was wondering if maybe anyone elts has a similar issue . When I was 47 one dsy I walked into the bathroom and without memory i was back in my then gf's bedroom...
Your friends in Canada put together this survey to help Epilepsy Toronto a non profit, raise awareness. We would love if you took 5 minutes to provide your answers.
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Hi all...I was diagnosed with epilepsy this past October after my second tonic/clonic seizure episode. Both seizures occured at work. How embarrassing! So, I lost my last job do to attendance...
I have had tonic-clonic grand mal seizures for roughly the last 4-5 years. They appear to be brought on by stress. When my life is the most hectic, that's when they strike. Yesterday, after a...
Just wanted to share my story. About 11 years ago my husband and I were working outside. Being a Nurse I knew to stay well hydrated and rest. Anyway after the second day of working outside in...
Hello all,
My daughter had a seizure 4 days after treating ear infection, runny nose for more than a month. She didn't have high body temperature so doctors told us she needs to go and...
I grew up with epilepsy for over 33 years of my life. In 2011, I had a lobectomy on the left side of my brain to remove a non-cancerous tumor. I have been seizure free ever since! My life has...
I have Focal On-set Impaired Awareness Seizures (Complex Partial Seizures), and I can also have Tonic-Clonic Seizures (Gran-mal Seizures). Here are few incidents that have happened to me over the...
My husband was diagnosed with epilepsy when he was 8. It was during his parents divorce and the Dr said it was from stress and that he would grow out of it. He never did. Medications subsided/...
** warning this is a long post mostly rambling**
I was diagnosed with Epilepsy about 12 years ago (mostly complex partial seizures from temporal lobe) . I have been on different medications...
Confused Doctors
Hi I wanted to see if this has happened to anyone else but when I was about 12 years old I was playing football and received 4 concussions over a 1.5 year period. A few...
fter having many severe episodes that I will describe below, an EEG showed seizure tendencies. I have now been using Keppra for about 3 months but am now having more episodes. The problem is,...
My son is 19 and has CP. He has always had Diastat in his backpack. Recently nurse stated medication needs to be at school. I understand it is school policy, but when he is not at school, he needs...
Hello,
My name is Zach Brien. I have lived with juvenile myoclonic epilepsy for roughly 10-and-a-half years. It has certainly changed a lot of aspects of my life, as living with epilepsy...
Hello Everyone,
I'm new here and learning so much on this EF website. I had my first Seizure in Sept. 2019. Being almost 50, it brings a new understanding to this life. I had a...
This is my first time on a message board. I am 23 and live in Wichita, KS. For years, I have blamed epilepsy for all of my shortcomings including dating. Does anyone have any advice? Also, if you...
Hi all! New here. I have been diagnosed with epilepsy for about 14 years now (im 35). I initially was seen having grand mals. I was on carbamazepine for 13 years when i was advised to change over...
I had a partial seizure yesterday, my first for 3 and half years after I was put on Keppra/Leviceteram to stop them. It wasn't a tonic/clonic that I used to have so I didn't pass out but...
Hello everyone, my name is Dominika. I was diagnosed with epilepsy at the age of 25. I just recently experienced my first seizure ever which was extremtly terrifying. I have just started my new...
Hello, My wife has had epilepsy for 30 years now since she had a brain tumor removed and radiation therapy. After finding out the hard way, we discovered that she is allergic to Dilantin, Tegretol...
The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.
