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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: Duaneh68 | 03/2020 | 6 Comments

Hi there im new to here and was wondering if maybe anyone elts has a similar issue . When I was 47 one dsy I walked into the bathroom and without memory i was back in my then gf's bedroom...

Created By: Schmitzj | 03/2020 | 1 Comment

Your friends in Canada put together this survey to help Epilepsy Toronto a non profit, raise awareness. We would love if you took 5 minutes to provide your answers.

https://forms.gle/...

Created By: sbauer420 | 03/2020 | 4 Comments

Hi all...I was diagnosed with epilepsy this past October after my second tonic/clonic seizure episode. Both seizures occured at work. How embarrassing! So, I lost my last job do to attendance...

Created By: jtaylo07 | 03/2020 | 4 Comments

I have had tonic-clonic grand mal seizures for roughly the last 4-5 years. They appear to be brought on by stress. When my life is the most hectic, that's when they strike. Yesterday, after a...

Created By: Sallen6861 | 02/2020 | 3 Comments

Just wanted to share my story. About 11 years ago my husband and I were working outside. Being a Nurse I knew to stay well hydrated and rest. Anyway after the second day of working outside in...

Created By: lazarus78 | 02/2020 | 2 Comments

Hello all,
My daughter had a seizure 4 days after treating ear infection, runny nose for more than a month. She didn't have high body temperature so doctors told us she needs to go and...

Created By: Michael1978374 | 02/2020 | 2 Comments

I grew up with epilepsy for over 33 years of my life. In 2011, I had a lobectomy on the left side of my brain to remove a non-cancerous tumor. I have been seizure free ever since! My life has...

Created By: MC_5a53c0cb79487 | 02/2020 | 4 Comments

I have Focal On-set Impaired Awareness Seizures (Complex Partial Seizures), and I can also have Tonic-Clonic Seizures (Gran-mal Seizures). Here are few incidents that have happened to me over the...

Created By: Smiller1090 | 02/2020 | 1 Comment

My husband was diagnosed with epilepsy when he was 8. It was during his parents divorce and the Dr said it was from stress and that he would grow out of it. He never did. Medications subsided/...

Created By: Jbinf | 02/2020 | 2 Comments

** warning this is a long post mostly rambling**

I was diagnosed with Epilepsy about 12 years ago (mostly complex partial seizures from temporal lobe) . I have been on different medications...

Created By: ntnewhampshire | 02/2020 | 4 Comments

Confused Doctors

Hi I wanted to see if this has happened to anyone else but when I was about 12 years old I was playing football and received 4 concussions over a 1.5 year period. A few...

Created By: fizzics | 02/2020 | 7 Comments

fter having many severe episodes that I will describe below, an EEG showed seizure tendencies. I have now been using Keppra for about 3 months but am now having more episodes. The problem is,...

Created By: Crystalex1 | 01/2020 | 2 Comments

My son is 19 and has CP. He has always had Diastat in his backpack. Recently nurse stated medication needs to be at school. I understand it is school policy, but when he is not at school, he needs...

Created By: ZachBrien | 01/2020 | 2 Comments

Hello,
My name is Zach Brien. I have lived with juvenile myoclonic epilepsy for roughly 10-and-a-half years. It has certainly changed a lot of aspects of my life, as living with epilepsy...

Created By: dancing4yeshua | 01/2020 | 3 Comments

Hello Everyone,
I'm new here and learning so much on this EF website. I had my first Seizure in Sept. 2019. Being almost 50, it brings a new understanding to this life. I had a...

Created By: BrettV | 01/2020 | 3 Comments

This is my first time on a message board. I am 23 and live in Wichita, KS. For years, I have blamed epilepsy for all of my shortcomings including dating. Does anyone have any advice? Also, if you...

Created By: Msy110 | 01/2020 | 1 Comment

Hi all! New here. I have been diagnosed with epilepsy for about 14 years now (im 35). I initially was seen having grand mals. I was on carbamazepine for 13 years when i was advised to change over...

Created By: JoeShmoe | 01/2020 | 2 Comments

I had a partial seizure yesterday, my first for 3 and half years after I was put on Keppra/Leviceteram to stop them. It wasn't a tonic/clonic that I used to have so I didn't pass out but...

Created By: dominikalaskowiecka | 01/2020 | 3 Comments

Hello everyone, my name is Dominika. I was diagnosed with epilepsy at the age of 25. I just recently experienced my first seizure ever which was extremtly terrifying. I have just started my new...

Created By: cbodnar15 | 01/2020 | 2 Comments

Hello, My wife has had epilepsy for 30 years now since she had a brain tumor removed and radiation therapy. After finding out the hard way, we discovered that she is allergic to Dilantin, Tegretol...

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