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Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: BOWERSJM | 03/2018 | 0 Comments

I am a 30 year old man from Pennsylvania. I started having seizures around the age of 14, I came home tired one day and when my family couldn't wake me for supper they realized something was...

Created By: tactical | 03/2018 | 2 Comments

Hi wife who has had a series of troubling symptoms over the years just got a blood panel result with raised titers...supposed to be 40 or under she is at 80....can anyone...

Created By: kjs | 03/2018 | 9 Comments

My four year old was diaganosed Friday with seizures after she stopped breathing on me and I did CPR on her on the side of the hughway. Followed by her doing it twice more in the ER where they had...

Created By: | 03/2018 | 5 Comments

Hello, I'm a 36 year old Native American female. I've had a seizure disorder since I was about 7 years old. I really don't know what started it but it wasn't until I was 13-14...

Created By: snoodle_5aa6070b29e04 | 03/2018 | 1 Comment

Hi all,
I was diagnosed with absence seizures about 7 years ago and have been on medication ever since. I have always been able to "feel" my absence seizures and am only able to...

Created By: Dave E | 03/2018 | 7 Comments

Hi, i am a 53 year old professional Fire & Rescue Officer, always been a active fit person and up until May 2016 never been ill or injured other than rugby injuries.
In May 2016 i...

Created By: Tryingtobehopeful | 03/2018 | 1 Comment

I've had a sporadic history of seizures since I was in my late 20's. Never had them until then. They come one or two at a time and then I may go seizure-free for a number of years and...

Created By: snowboarder44 | 02/2018 | 1 Comment

It has been a year now since i hit my head in an accident. After 3 months from my head injury instarted having partial seizures. My memory has delcined so that every day feels like ground hog day...

Created By: jstanton73 | 02/2018 | 2 Comments

Hello all, here is my story. I was diagnosed with grand mal and petit mal seizures. I have no issue with that. The problem is that I don't feel them coming on at all so I can't prepare...

Created By: kirsty_5a8181c909a82 | 02/2018 | 0 Comments

I’ve been diagnosed with epilepsy and non epilepsy attacks would a service dog help with both attacks or just with appilepsy

Created By: Pmcdonald2417 | 02/2018 | 2 Comments

My son had an accident when he was 12. They did an EEG and it was abnormal with consistency of generalized epilepsy. My son did a 48 he EEG and had the same results. His neurologist then had him...

Created By: vaconners | 02/2018 | 2 Comments

Hello Everyone,

I am not afraid to share to my story, and those I do share with tell me "it's courageous." To me, it's just the truth.

In 2016, while in a...

Created By: GingerRocks82 | 02/2018 | 4 Comments

Hi all, I'm new here and this is my story. Please do come back to me with your thoughts and suggestions here, i'm going to spill it all out with authenticity here so bare with me.

Created By: Jetaylor2425 | 02/2018 | 5 Comments

I am a 50 year old CPA with 2 kids who has had epilepsy since age 7.

Created By: Aspie | 02/2018 | 2 Comments

Hello. This is the first time I'm sharing my tale with someone who isn't my doctor or family. They just don't understand. I had my first seizure at 17 years old, I'm 31 now....

Created By: viktor92 | 02/2018 | 0 Comments

Hello everyone,

I want to share my experience with everyone of you, and ask for advises and your help.

My first attack happened around 6 years ago. I started to feel tingling on 2...

Created By: Aloni | 02/2018 | 0 Comments

I just started this and I wanted to say that I have had seizure ever since I was 5 and it is making me just a lot upset so I decided to talk about it.

Created By: Aloni | 02/2018 | 1 Comment

I just started this and I wanted to say that I have had seizure ever since I was 5 and it is making me just a lot upset so I decided to talk about it.

Created By: ashwednesday | 02/2018 | 5 Comments

About me: 26 year old male with no prior history of seizures.

I went to lie down shortly after 7:00 PM because I was feeling strange. The best way that I can describe it is that I felt...

Created By: epihelp | 02/2018 | 0 Comments

Hi everyone,

The Epilepsy Foundation national office is making some new videos and updating educational programs with new footage of seizures. While simulated seizures with actors can be...

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