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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: ruebmeg10 | 07/2018 | 0 Comments

I’m new to this forum but I wanted to really share my story to see if anyone else is going through what I’ve been through! A couple years ago I fell down a flight of concrete stairs striking my...

Created By: CAJ84 | 07/2018 | 1 Comment

For a few years I've been having odd symptoms...mainly while trying to fall asleep. I get random left side numbness that comes and goes. As I'm falling asleep I get this feeling that my...

Created By: Hinesenberg79 | 07/2018 | 2 Comments

I had a Wada test back in 2004. When they put the left hemisphere to sleep, they said I wouldn't be able to speak. The strange thing was is that I still could and they did say why I could,...

Created By: kendavistoo | 07/2018 | 0 Comments

About 15 years ago my wife suddenly started having seizures. She was placed on Keppra, but continued having Grand Mal and Mini Mal seizures. Her worst day was with nine seizures. She is 70...

Created By: esaletta | 07/2018 | 1 Comment

Hi! My name is Emma and I was diagnosed with epilepsy when I was fourteen years old. When I had my first seizure, I was in the middle of working out with my trainer and my stepmom. I just stopped...

Created By: KristinawithaK | 07/2018 | 1 Comment

My name is Kristiana and I have spent much of my three decades on Earth trying to keep my feet planted firmly in the ground.

I was first diagnosed with "petit mal absence epilepsy...

Created By: camryn_dufrene | 07/2018 | 3 Comments

I feel bad for ranting here but I don't know where else to do it and feel safe about it. I have been dealing with epilepsy since I was 11 it started with absent seizures, then my 8th grade...

Created By: ColinBo | 07/2018 | 2 Comments

I get very specific prodromal warnings 8-12 hours ahead..(absences for a second, tired, confused )but 75mg Of Lamatrogine don’t seem to stop seizures and I wondered what else I could do to stop...

Created By: Tgirlcov81 | 07/2018 | 0 Comments

So for about six months I’ve been going through the most crazy things. I started passing out here and there and had had issues in the past with passing out but nothing ever came of it. Then I...

Created By: blmurray | 07/2018 | 0 Comments

I`ll try to be as brief as possible, & am reaching out for answers as I`m at my wits end. If anyone can help or suggest something, please feel free. I had my first (& only) Grand...

Created By: Damla.G | 07/2018 | 2 Comments

Hey! I am 16 years old and i've started having seizures when i was 11, maybe 12. At first, i didn't think it was something important; they were just little spasms and sometimes...

Created By: Insomnia | 07/2018 | 0 Comments

Just wondering if anybody monitors these postings since they are filled with spam that doesn't belong here. My hair is fine. I don't have a penis to enlarge. No need for miracle diets....

Created By: 11361138csm | 07/2018 | 1 Comment

I'm the mom of a 19 yrs old child. My daughter was diagnosed with epilepsy two years ago. She has also other health issues, like ADHD,and nuercongistive disorder and several more. This has...

Created By: KSorto | 07/2018 | 3 Comments

Hi, I’m 19 and recently in the past year been having convulsions. First, I was having headaches and thought my VP Shunt was malfunctioning but that came back clean. They refered us to a...

Created By: Alexia S. | 07/2018 | 0 Comments

Hi, I'm Alexia and I'm 12 years old. I've had Epilepsy since I was 9 and a half and it just came out of the blue. At the time, my dad had just lost his job and we were moving, which...

Created By: msdionildamorales@gmail.com | 06/2018 | 0 Comments

confused, had my first seizure in 2013, had my 2nd one within 6-7 months then a seizure every year after, i was on keppra but i went off of it myself because i was confused, didn't have...

Created By: pope0528 | 06/2018 | 5 Comments

My 18 yr old daughter recently had her first seizure, lasted about 20-30 seconds. She has had morning "shakes" for the past 4 years. Always in the morning and always currently/after...

Created By: Jessica Siler | 06/2018 | 0 Comments

Myself Jessica, wanted to inform you about the best platform to discuss/present your opinions/views/research/ on epilepsy and its treatment.
"Epilepsy Treatment 2018" conference...

Created By: Ismael Abad | 06/2018 | 1 Comment

Hello, it is likely not to find publications on this topic, we can usually see experiences of children or adolescents with epilepsy who are studying, but what do you think about my testimony about...

Created By: NalaniLCruz | 06/2018 | 1 Comment

As a kid, I was always told I was a good baby. I never really cried, yelled, or not slept. In fact I was told I always looked very focused. As I grew up I remember always being tired. I woke up...

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