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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: vskukreja | 08/2018 | 1 Comment

My mom's new neurologist started seizure med for my 78-year-old mom in April 2018. All medical tests showed no sign of seizure when she was admitted. Is there any medical test that could...

Created By: Mymypie | 08/2018 | 6 Comments

I just woke up in a lot of pain. In my dream, i was having a massive seizure. There was uncontrollable shaking and a humming noise. My body was rolling from side to side. My face is still tingling...

Created By: CrazyMom | 08/2018 | 0 Comments

I pray this reaches someone that has similarities as I. I believe that what is going on is possibly due to permanent effects of my anti-depressants; my mother thinks it could be psychosomatic....

Created By: shelirenee | 08/2018 | 3 Comments

My daughter had her first seizure (tonic-clonic) on August 5, 2017, just a month before her 19th birthday. She was put on keppra and after 7 months was cleared to get her license. Just before that...

Created By: Twogophers | 08/2018 | 2 Comments

My wife is 46 and just had a 2nd seizure 21 years after her 1st. Dr wants to go strait to meds but after reading about PNES and her current levels of stress/anxiety I’m not convinced it’s true...

Created By: allison_kiss95 | 08/2018 | 2 Comments

I diagnosed with epilepsy at the age of 15 with dreams of going into the Military. With an adolescent mind and believing that I knew better than the doctor, I didn’t take my medications like I was...

Created By: Charaz | 08/2018 | 2 Comments

When I was in my late teens I had a seizure in my sleep. Nearly scared my parents to death. I was put on Dilantin and Phenobarbital but was unable to function normally while taking it, so I just...

Created By: gmerashell | 08/2018 | 2 Comments

I had my first seizure when I was 13 in the school library. I lost all consciousness and was taken to the emergency room. Since elementary school amd so on though when I was around computers my...

Created By: viktor92 | 08/2018 | 0 Comments

Hello everyone,

About 7 years ago I had 3 epileptic shocks, after EEG test, magnetic resonance, doctors said that the brain function is normal. The shock started with a feeling in my right...

Created By: viktor92 | 08/2018 | 2 Comments

Hello everyone,

About 7 years ago I had 3 epileptic shocks, after EEG test, magnetic resonance, doctors said that the brain function is normal. The shock started with a feeling in my right...

Created By: Natasharodrig | 08/2018 | 1 Comment

Hi guys
So I’ve had two seizures the first one was in a car driving with my friends normal day at uni
I remember that morning I had a head ache and it happened while I was in the...

Created By: klovephx | 08/2018 | 2 Comments

My best friend has seizures on a regular basis and she is on so many medications. I have been trying to help her and I finally found the ONE THING and the only thing that has been all the...

Created By: G3 | 08/2018 | 1 Comment

Through personal experience I’ve learned that overcoming one's temporal lobe epilepsy is indeed possible. What's the secret? Creating the proper mindset to accomplish your fitness/...

Created By: sln935 | 07/2018 | 0 Comments

I'm looking to get my first tattoo and have been seizure free for six years. Has anyone have advice for getting a tattoo for the first time having epilepsy? I'm a little nervous and don...

Created By: MariaMachado | 07/2018 | 2 Comments

Hello, i’m from Portugal and i have a baby with 12 months.
When she was 5 months old she had her first seizure .. the rmi did not detect anything and for 3/4 months she was ok with...

Created By: michellem167 | 07/2018 | 1 Comment

I've been on Keppra 2000 mg for 7 years and was also on Depakote 1500mg for 5 of those years. Over time I became more apathetic and angry. I thought about having kids so i decided to get off...

Created By: burwell1999 | 07/2018 | 2 Comments

I am putting up this chat because I am needing people's thoughts on the following situation: I am a 37 year old male with epileptic seizures. At the current time, I would like go to school...

Created By: ackmke | 07/2018 | 3 Comments

I have right temporal lobe epilepsy (TLE).. Last night I had a focal aware seizure. Today I feel very strange... I feel a bit unfocused, out of it, and tired. Which I think is normal... What'...

Created By: aceace | 07/2018 | 0 Comments

Employer is harassing me and I am filing with the state and federal government. I am still working there. Any advice? I can't find any information on how the claim process goes, what to...

Created By: aq1997 | 07/2018 | 4 Comments

hi! i thought i'd check this website out because i'm curious to see if anyone's ever had a similar experience. i had a grand mal seizure 3 years ago in my sleep. got taken to the...

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