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Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: dj1984 | 10/2018 | 2 Comments

Hello Everyone,

I am Divyesh Jain. I live in India. I am having epilepsy since the age of 12. At present, my age is 34. I need guidance on how should I go about marriage. I don't get...

Created By: Lizzybabe718 | 10/2018 | 7 Comments

my husband was on dilantin 300mg twice a day so (600mg total daily) and was well controlled on dilantin no seizure activity for like 6 years. With the recent studies of long term side effects his...

Created By: RA1416 | 10/2018 | 5 Comments

I need some help please. I am 30 (31 in November) years old (mother of two beautiful girls and pregnant with my third) about 2 years ago I started having auras everyday sometimes twice a day. I...

Created By: Mrs_Simns | 10/2018 | 0 Comments

My niece is 25 years old and she has been experiencing conscious seizures often induced by her nut allergy (however they come on randomly too). During some of these seizures she would experience a...

Created By: Cole.Whitcomb | 10/2018 | 0 Comments

Hello all! My name is Cole, I’m from South Dakota, and have been living with epilepsy for just a few years now. I have reached a therapeutic level with my medication but it took a couple years to...

Created By: rachelrobin | 09/2018 | 1 Comment

I have musicogenic seizures, a rare type of reflex epilepsy. Since being diagnosed almost 15 years ago in my mid twenties, I’ve met many people with epilepsy, but no one with musicogenic seizures...

Created By: byrdmom2 | 09/2018 | 4 Comments

One late evening in November 1979, I was thirteen years old. I was babysitting a small baby. Back then I was a babysitter on weekends to earn extra money. I even went as far as to take classes and...

Created By: sarahshapiro11375 | 09/2018 | 1 Comment

Seizures can be very tiring to both the patient and the ones surrounding them. it's not the tiresome taking care of them. But sometimes, it tires us seeing them suffering.

Created By: JustPassinBy | 09/2018 | 4 Comments

Just call me Chin. I'm 19. Got diagnosed with Absence Seizure when I was 14. Kept switching meds because it didn't seem to work with me til we went with Lamotrigine.

I've...

Created By: Brain Blur | 09/2018 | 8 Comments

I'm 48 years old and have worked a number of jobs all my life until the seizures had torn up my body to the point of no return.
I finally applied for disability as oftentimes seizures...

Created By: bmcnamara562 | 09/2018 | 1 Comment

Hey, I am 17 and I am a teen with epilepsy living in New Jersey and I'm creating a video about the awareness of teens with epilepsy (daily life, extra curriculars, schooling) for a Girl Scout...

Created By: amypage | 09/2018 | 4 Comments

Hello! My name is Amy. I'm 22 years old, and have never been technologically-inclined. My baby sister (though being 16 makes her "not a baby") encouraged me to post on this blog. I...

Created By: Constance1237 | 09/2018 | 2 Comments

I have been having what I call episodes for the past few years. Last year I had my first major one. I was sitting in my car waiting for my husband and my stomach felt like I was on a roller...

Created By: Weezer | 09/2018 | 2 Comments

My friend and co-worker who is a long-time epileptic lost her job with the federal government over the one-time use of cannabis to assist with terrible migraines she was having from the anti-...

Created By: clairsy97 | 09/2018 | 1 Comment

Hi there,
I've just joined this site and thought I could use some help. Basically when I was 12 i had my first seizure. I had another one a week later. My parents then took me to my...

Created By: Cheraine82 | 09/2018 | 0 Comments

Hello Everyone!

I'm sure my story is similar to many others and that is what I'm hoping. Here it is.. it may be a bit of a novel... apologies.

Had my third child at the end...

Created By: neverabreak_dj | 09/2018 | 1 Comment

Hello my epilepsy warriors! I want to share my story with you and I would love for you to share yours with me. Here is a link to my story: https://throughdavidseyes.com/2018/06/20/davids-story-...

Created By: Jazzgirl95 | 09/2018 | 2 Comments

Hi everyone! My name is Jazz and I thought I would make this post as I'm currently going through a medication review being switched from 1000mg of Keppra twice a day to 250mg of lamotrigine,...

Created By: zazz82 | 09/2018 | 3 Comments

I’m new here and I wasn’t sure where to ask questions so I’m trying this. I had my first grand mal seizure at 13 years old. I always bounced back rather quickly after my seizures. I’m 35 now and I...

Created By: lanekoehl29 | 08/2018 | 0 Comments

This has taken me forever to write. Mainly because it still scares me to admit what happened, and what still may happen to me.

I was in college when my first seizure occurred. Freshman...

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