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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: HF1 | 11/2018 | 1 Comment

Had my first seizure during an extreme physical challenge equivalent to several triathlons. I was throwing up and ultimately seized then went into a coma for near a week.
I was honorably...

Created By: katrina138 | 11/2018 | 2 Comments

My son is 6 years old. He had his first seizure when he was 2 days old. He was admitted to the hospital for 2 weeks. He was then put on seizure control medication. He went a year without having a...

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Created By: thanik60 | 11/2018 | 0 Comments

ขอบคุณมากครับสำหรับความรู้ เป็นประโยชน์ มากๆ เลย สมัครเอเย่นต์tndbet https://ufabet-group.com/ :AO

Created By: marcyinkandstylist | 11/2018 | 3 Comments

After a tonic clonic seizure I feel terrified, like the worst panic attack you could imagine, it starts as soon as I come out of it, the first thing that is clear to me is that I'm terrified...

Created By: johnlp | 11/2018 | 0 Comments

I was a supervisor in the oilfield when I was diagnosed with epilepsy. I had to leave job lucky I had insurance. After roughly 10 types of meds. several stays in hospital it was found I could not...

Created By: Tori Kaye | 11/2018 | 3 Comments

Hi, my name is Tori. I was diagnosed with primary generalized epilepsy when I was eight; I am now 22. I have two beautiful children now. I had multiple seizures while pregnant with my first child...

Created By: hmwink005 | 11/2018 | 2 Comments

Hello! I have a beautiful 12 year old daughter with Jeavons Syndrome. I would like to tell her brief story and see if anyone has any tips, tricks, warnings and suggestions since we are new to this...

Created By: startrek4life | 11/2018 | 0 Comments

I had my first seizure in 2010 while away at college. I felt so helpless, as none of my family were nearby (my parents were almost 4 hours away). This whole situation was new to me. I’ve never had...

Created By: Kalob | 10/2018 | 0 Comments

Hello my name is Angela and my son who is 5 now has been having seizures since he was 3 months old we have been through 3 nuerologist all together finally happy with #3 just hate the drive there...

Created By: SamanthaStreet | 10/2018 | 1 Comment

Hi! This is my first time using this chat. I'm 21 with focal epilepsy for 10 years. There are only 2 neurologists in my province (NL, CA) and mine put me on 3000 mg of Keppra, 200mg Vimpat...

Created By: kyliesdad | 10/2018 | 2 Comments

10/23/18 Hello all. I am new to epilepsy and trying to get up to speed on all of the terminology, treatments, prognosis, etc. I'd like to share my story with you and I have some questions...

Created By: bevanne | 10/2018 | 6 Comments

I’ve had seizures for over 25 years as a result of encephalitis. I’ve taken about every anti-convulsive med on the market and combinations thereof. I had an SEEG to see if I was a surgical...

Created By: Darren1980 | 10/2018 | 4 Comments

I feel massively depressed today, so I thought maybe just trying to type out something I don’t understand, to people who may, might help.

My first ‘episode’ was in 2007, I worked for an...

Created By: dr manisha | 10/2018 | 1 Comment
Created By: mariechi97 | 10/2018 | 2 Comments

About 4 months ago, after going through numerous doctors, I finally found a doctor that listened and believed me when I said that I had epilepsy. However, he is still on the fence about it....

Created By: Muriel | 10/2018 | 0 Comments

My mother who is 85 had the flu beginning of February and was sedated and intubated for 8 days and nearly died. She survived and then had a seizure in April. They found that she had an arterial...

Created By: princesskitten | 10/2018 | 1 Comment

I thought I'd share my story with the world, especially those with temporal lobe epilepsy or are suspicious they have it.

I had my first seizure when I was about four. Supposedly,...

Created By: NRbierman | 10/2018 | 3 Comments

To those reading this, hello my name is Nick. I’ve currently 26 and have had epilepsy since I was 14. I suffer from both grandmaul seizures and atonic drop attacks. On four different medications...

Created By: paulscan | 10/2018 | 0 Comments

History of how of health problem. Very short:
Stop Child Abuse Now since Oct. 13, 1975 and Oct. 13, 2014 and for Oct. 13, 2048 in a "Time Capsule" for Donora, (Pittsburgh),...

Created By: wmi3@aol.com | 10/2018 | 0 Comments

Hi my name is Mike and i have had Epilepsy for many years and sadly in my case its getting worse .Right now i am on my 8th change of medication and in fact have just recovered from my latest...

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