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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Topic: Share Your Story

Created By: stokerfan | 12/2018 | 2 Comments

Has anyone had non-epileptic seizures? If so what were the signs? I couldn't find any information on them.

Created By: jaw53545 | 12/2018 | 1 Comment

Hi. my name is Jason Womble, 45 living in Wisconsin. I apologize upfront for all the information, but I figured an idea of where things started to now would be helpful.

Back in late April...

Created By: stokerfan | 12/2018 | 2 Comments

Does this sound like I have a seizure? I stopped with my hand a door frame. Unresponsive to simple questions. Hand slightly. Staring off. Tight grip on objects in hand. Needed support to...

Created By: irwin2ka | 12/2018 | 2 Comments

Hi everyone! I finally have become more comfortable and also curious if there are others out there who have possible had a similar experience as mine...

In January of 2014 I was diagnosed...

Created By: rleon | 12/2018 | 0 Comments

Goodnight, I'm from the Dominican Republic, I do not speak English, I'm using a translator to express and tell my story.
I have a 7-year-old girl, who was diagnosed with epilepsy...

Created By: scrislip1 | 12/2018 | 1 Comment

I wrote my first book and it is titled “Weird Girl With a Tumor” - available on Amazon. It entails struggles and challenges I went through while living with epilepsy. I hope it inspires others...

Created By: blgibbs@hotmail.com | 12/2018 | 0 Comments

Sad to say this but is true that I was born with a seizure disorder because the doctor or CT scan found a scar inside my skull that is not able to be removed from the tissue part from the brain...

Created By: SallySue | 12/2018 | 7 Comments

Hello,
I would like input into your experiences of how likely it is to find activity of simple partial ( or focal) seizures on EEG? As I get mixed reviews on this. For instance would video...

Created By: Pinkie062790 | 12/2018 | 1 Comment

My first seizure happen when I was eight years old. My mom told had grand mal in her bed but didn't waking up a little until was in ambulance. I was full awake once I realized I was in...

Created By: nicolejking15@gmail.com | 12/2018 | 0 Comments

https://www.gofundme.com/epileptic-needs-help-with-tuition&rcid=r01-15438290574-a2b65c8939fe4ace&pc=ot_co_campmgmt_w

Hello. I am trying to figure out how I will be able to...

Created By: Livestrong_5aa285b245f85 | 12/2018 | 0 Comments

Dear All,
Wish you the best of the day. My question is a simple one. I have been seizure free for the past 10 years but i sometimes go through auras but they are taken care of in due time,...

Created By: Spanky25 | 12/2018 | 1 Comment

I’ve been on Dilantin since I was a teenager. I am now 48 & seizure free since on the meds.
The past few months I smell this gas toxic smell. However, my wife & family says...

Created By: Momto2 | 11/2018 | 2 Comments

My healthy teenage son was on a delayed vaccination schedule because of my concerns with vaccines in the first place. As he got ready for middle school I felt pressured to finish his vaccines and...

Created By: sl272 | 11/2018 | 1 Comment

Hello,
I am the mother of an 18 year old boy who had his first general/primary seizure May /2018 lasting over 8 minutes. He has been healthy other than normal childhood illnesses cold, ear...

Created By: Flora_5bfeb7f3091f8 | 11/2018 | 0 Comments

Hello! I am new here. I have epilepsy since i was 12 and now I am 33. I have used many drugs but the main drug that i take is depakine chrono. When i was younger i used to have many seizures but...

Created By: mmg | 11/2018 | 0 Comments

I am new here and I kinda saw some old discussions and exchanges in this site which I thought were really helpful. Ive had fainting spells which were tested and diagnosed to be linked with...

Created By: stokerfan | 11/2018 | 1 Comment

Hi. I'm new to this. I had my first seizure when I was 44. Seemed a little late in life to have one. I don't remember any of it. All i remember was asking my husband numerous times...

Created By: Danylik12 | 11/2018 | 2 Comments

I had my first seizure in Kindergarten when I was 6 years old and I was diagnosed with epilepsy a little later that year; at the time I was having about 50 seizures a day including the seizures I...

Created By: crshorty3 | 11/2018 | 0 Comments

Hi there, I am a 31 yr healthy ( as far as I know) female and I think I might have had a seizure. I don't have any history of seizures so im kinda asking for insight. A little back story of...

Created By: ChannonMarie | 11/2018 | 0 Comments

I was first diagnosed with epilepsy on August 27, 2010; apparently they lost me twice, no pulse, nothing. I remember seeing this bright light and a woman’s face that I feel like I had seen before...

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