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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: jblowitski | 01/2019 | 1 Comment

If you want to know my story that with Epilepsy here are three great YouTube videos I made showing my history and experience over the past 6 and a half years with this condition (Refractory...

Created By: andrewmetzger00 | 01/2019 | 0 Comments

Hello All,

I graduated with a B.A. in May of 2017 while working full-time. I moved to with my wife and daughter to a new town and began law school later that Fall. I had no history of...

Created By: murdanyc | 01/2019 | 5 Comments

My Epileptic issues started in 2017 when I experienced a car crash due to going unconsious while driving. I hit 2 parked cars, totaling my car. 2 women came out to see if I was ok, when they came...

Created By: Bigreddog#1 | 01/2019 | 0 Comments

I feel as if my company is targeting me by assigning my job responsibilities to another manager. A new manager just started a month ago or so and she has been given all of my job duties such as...

Created By: Getya13 | 01/2019 | 2 Comments

Hello, I found this forum while searching google for "marijuana coughing small seizure"

I'm 37, Male, 6'1", 250lbs, I smoke high grade (18-25% THC) flowers from a...

Created By: Charlee_5c36b5cc81dea | 01/2019 | 2 Comments

My youngest daughter, Charlee, had her first grand mal seizure when she was ten months old. The doctors kept telling us it was just febrile. I knew it wasn't but they wouldn't listen....

Created By: ninkatok123 | 01/2019 | 2 Comments

Nice to join this web

Created By: Music4Nations | 01/2019 | 4 Comments
Created By: Jasmarie21 | 01/2019 | 1 Comment

I started having seizures while pregnant. Then I started to have two more after I had my first baby. I started taking keppra one dose in the morning/one at night.

Created By: koka14 | 01/2019 | 1 Comment

My son was 10 months old when I witnessed his first seizure. At the time his pediatrician told me about febrile seizures since it occurred with a 102 temp and that it is common at a young age but...

Created By: scrislip1 | 12/2018 | 2 Comments

Hi everyone,
I am a brain tumor survivor. I had epilepsy for 8 years and constant, elastic seizures. I had my tumor removed at age 8, and have been seizure free. Recently, I wrote my first...

Created By: xxibgdrgn | 12/2018 | 0 Comments

Hello,
I am a 23 year old male living in Germany. My mother is 49 years old and she had her first "seizure" in November 2018 while we were eating something. She couldn't talk...

Created By: Kplato22 | 12/2018 | 1 Comment

I've lived with my boyfriend for 2 years now. The beginning of this year, he had 4 awful seizures in the middle of the night while he was sleeping. Grand mal, they are hereditary from one...

Created By: stokerfan | 12/2018 | 1 Comment

I was thinking about getting the Embrace 2 bracelet. Got a prescription from my Neurologist and it stated that I have localization related focal epilepsy. Not sure if the bracelet will work for...

Created By: mrlee123 | 12/2018 | 7 Comments

Hi there, I am a 31 yr healthy ( as far as I know) female and I think I might have had a seizure. I don't have any history of seizures so im kinda asking for insight. A little back story of...

Created By: Sweetblue298 | 12/2018 | 1 Comment

Four days ago while at work I had a seizure. Ended up in the ER. Blood work and CT scan came back normal. This was my first seizure ever. A littld over a month ago I went to prompt care and the Dr...

Created By: Ayda | 12/2018 | 1 Comment

I'm quite new with epilepsy.. i have myclonic seizures so i started taking phenobarbital 8 months ago and i have been seizure free for 4 months now.recently i found that phenobarbital is no...

Created By: Big Chungus | 12/2018 | 3 Comments

This has been happening off and on for the last two years, often multiple times per day. It usually happens upon standing up but will sometimes occur while running or very rarely when lying down...

Created By: Shae97 | 12/2018 | 4 Comments

I was diagnosed with generalized epilepsy. I've been seizure free about a year and a half now, but i'll get these strange feelings every once in a while that are hard for me to describe...

Created By: rhyblank | 12/2018 | 3 Comments

About 7 months ago started having what I think are small seizures. Certain sounds like a chip bag or someone eating would start to trigger a sound in my head that I have heard before and I will...

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