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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: ravisankar | 04/2020 | 2 Comments

I am Ravi from India and new to this forum. I had a seizure three months back. I am 27 years old with no previous seizure history and no family history. One day I was starting my two wheeler and...

Created By: mauifrancis | 04/2020 | 1 Comment

Being a design leader in a big tech company comes with great responsibility. Not only to the business but to the people you work with on a daily basis — some of which you have the pleasure of...

Created By: K8-10 | 04/2020 | 3 Comments

Hello everyone. I haven’t posted on here in a long time. I have found lots of comfort in the past from this tight knit community so I figured I would come back for support. I have a 10 year old...

Created By: Ina_5e9b1353731fd | 04/2020 | 6 Comments

I was diagnosed with epilepsy at 19 years old. I am 33 now. Until one month ago I have been treated with tegretol (carbamazepine). In December I decided that I wanted to check my health status, so...

Created By: Chapali | 04/2020 | 5 Comments

Where do I begin?
I met my husband in 2006. He had experienced his first seizure 2 years before and had been prescribed Dilantin. We dated for three years and then got married- we were both...

Created By: MissKutri | 04/2020 | 1 Comment

I have a benign tumor which causes me to have seizures and right leg paralysis for like a short while. Anyway I was on carpomazapine for a while until I got pregnant and they switched me to keppra...

Created By: Wanderlusting45 | 04/2020 | 1 Comment

Hi, I’m new here & I was really hoping for others opinions that know/experience more of what I’m talking about. I’m 38/F & in Feb 2019, I was out to dinner with friends when I was...

Created By: aiden171001 | 04/2020 | 2 Comments

As I cannot contact my doctor due to the whole Coronavirus at the moment I was wondering if someone can help I have primary generalised epilepsy and I was wondering if this effects me playing...

Created By: szerry | 04/2020 | 6 Comments

My son had his first seizure a year and a half ago, at age 19, while away at college. He started out with a severe headache that then progressed to chills and a general feeling of being very ill...

Created By: Victoria&James | 04/2020 | 3 Comments

I've been with my husband James since High School. James was diagnosed with Epilepsy when he was 20years old and he is now 27years old.

I have witnessed so many of James seizures and...

Created By: mnop21 | 04/2020 | 3 Comments

Hi everyone! I'm Marissa, and I'm a 20 year old college student who has been dealing with muscle jerks for the last 7 months. They started in September before I'd go to sleep. A...

Created By: roslyn1203 | 03/2020 | 6 Comments

Help, im so worried, my 12 year daughter just been diagnose with Petit Mal and she was put on depakote for 22 days so she just tell me she heard a whistle in her head and sometimes heard funny...

Created By: sabilli | 03/2020 | 2 Comments

I was wondering if anybody else has been struggling with the same thing as I so I decided to post this on a forum. I have had periodic seizures since I was 16 (every 6 months) and was put on anti-...

Created By: musicogenic-epilepsy | 03/2020 | 4 Comments

Hello,
i'm 22 years old girl and I'm coming from Slovenia. Last year I was diagnosed with musicogenic epilepsy. I have problems with music 10 years (I have seizure when I hear the...

Created By: Jada22 | 03/2020 | 14 Comments

I can't sleep! I keep getting flashbacks of what happened yesterday when my husband had a seizure while driving.
He was diagnosed with epilepsy, grand mal, at the age of 15 years, but...

Created By: Plan-To-Succeed | 03/2020 | 1 Comment

Most human's are forgetting this until the time of threat of life of any type and most of our living with epilepsy is not a complete threat of our lives and part of living so value living and...

Created By: jun1365_5e6fd877895b1 | 03/2020 | 3 Comments

Hello, my name is Don, and my 27 year old son has had absence seizures since the 3rd grade. He currently takes Lamictal and Fycompa. His main issues occur as soon as he wakes up, he will stay in a...

Created By: yaegea51 | 03/2020 | 6 Comments

I have Nocturnal Seizures and was seizure free 7 years. A month ago I had my first day time seizure. With all the anxiety and lack of sleep I was to the point I was having anxiety attacks that...

Created By: certwelder56 | 03/2020 | 3 Comments

Hi All, I just had my third breakthrough seizure at work. Godbless em they haven’t canned me yet. I’m still looking for the best anti-seizure med combination. Let me know what you might have. Have...

Created By: irangel | 03/2020 | 2 Comments

As an epileptic, we all know what would trigger my seizures may or may not apply to you, so keep this in mind as you read on. I would also like to say that, though I'm an epileptic, I'm...

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