Where it all started..

I was on the phone when all of a sudden this feeling of something awful was going to happen washed over me. The next thing I remember was waking up in hospital and I was told I’d had a tonic clonic seizure. Then I started having a seizure every few days. A few weeks after and I was diagnosed with epilepsy. It completely changed my life. I had to drop out of university and had to quit my job, I was absolutely heartbroken. I didn’t realise (until I developed epilepsy) that it was so much more than just seizures. Once I’ve had a seizure I can’t get myself out of bed, I have to sleep all day and I can’t really speak or hold a conversation. I have bad mood swings, I’m forgetful and I hardly sleep anymore. Not to mention the auras that I experience along with all that. They hardest thing I’ve found is dealing with the uncertainty of it. I never know when it’s going to happen and I have no control over it. It makes me feel so unsettled and nervous but I’m sure it will get easier in time. I’m on medication now but my seizures aren’t completely under control. This website has helped me in so many ways possible and I’m so grateful that I have a platform in which I can talk to people who understand what I’m going through. I will not let my diagnosis define me. I will get my seizures under control and I will make it through the other side of this. Hope is the only thing that keeps me going.