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Where to go from here ...

Fri, 10/06/2017 - 10:50
I'm a mother to a 23 yr old, he was a 6, 5 month premature baby. After the initial 3 ICU months, I thought the heartache was over, I was finally bringing home my baby and only child. Little did I know it was just starting. At first, very early age, he was diagnosed with hyperactivity, medicated with ritalin, at the age of 13, it was suspended, according to doctors no longer needed. Six month after he started having *absent moments* , after researching , I discovered it was some sort of epilepsy, soon after started the seizures. For the last 10 years, we have searched and gone through several doctors, from been told he can lead a perfect normal life as long as his seizures are controlled by him taking his medications . although the seizures were rare, they still happened, to being told, we should look for a home for him, like put him away, as he will never have or a be normal. I want to make one thing clear here, this is not about my pain, or our pain, including his fathers, this is a cry out for help, there has to be someone out there, who wants to help my son, so he can have a decent life ... Every exam he has made and I have lost count, show nothing, everything is perfect, yet as I type now, I can tell you that my son is currently in hospital after having a very bad seizure yesterday, falling and hurting himself badly, I found him on the floor covered in blood. yes, he has been stitched and more tests ... nothing found ... and so he continues. A bright young man of 23 who can't get a job because of his seizures, who is developing a negative psychological mental view of himself, because he can't be normal or love normal, because at the end of the day, no one can tell us what is wrong with him .... it seems no one cares

Comments

Have you spoken with your

Submitted by Amy Jo on Sun, 2017-10-08 - 09:57
Have you spoken with your local affiliate or the national Epilepsy Foundation? You should be able to get more targeted advice. A lot of the advice people would give here includes seeing an epileptologist at a well regarded hospital (see us news rankings), trying diet therapy and when you’ve gone through all the different families of meds and added supplements commonly used with epilepsy like magnesium, trying cbd oil.

Don't give up hope, I can

Submitted by Acain2121 on Tue, 2017-10-10 - 08:18
Don't give up hope, I can relate your frustration as a mother. I'm new to this so I can't offer much information but know I'm here to listen and give sympathy. Praying you find answers to help your son. ❤️

CBD! Look up some

Submitted by kshroads on Sat, 2017-10-14 - 15:29
CBD! Look up some testimonials on youtube of CBD and it's help with those having seizures, its incredible. I work with a company who's trying to spread the word so anyone can use it to help change their lives. Ill attach a link below - but please research CBD's effects on seizures so you can see for yourself its potential is helping with Epilepsy. Were on the forefront of CBD research and so far the results are INCREDIBLE. Heres a link to check out a list of our products (I suggest trying the tinctures) - I am here to help!! If you know of anyone who could benefit from this information - please copy this link to them so we can get them some potential relief from their epilepsy. Thankyou - I wish everyone the best. http://arenalife.com?afmc=23&utm_campaign=23&utm_source=leaddyno&utm_medium=affiliate

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