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Is VNS Better For Dual Or Tonic-Clonic?
Sun, 10/27/2019 - 20:29Topic: Share Your Story
Hi everyone,
My girlfriend and I both have epilepsy (she has dual, I have tonic-clonic) and we have considered undergoing surgery for the VNS.
If so, we may do so after the New Year only if schedules work for both of us given that we both are in college.
Regardless of the type of seizure, have you had the VNS implanted in you and what has it done for you so far?
Hi, Thank you for posting. If
Submitted by Anonymous on Mon, 2019-10-28 - 16:04
Hi, Thank you for posting. If you or your girlfriend decides to have surgery, your epilepsy team will help prepare you both and your families. Your healthcare team will also review what options are possible for you and will help guide you through the proper evaluation and testing, prior to making a decision about surgery. Working together with your epilepsy team is the key to understanding your epilepsy and the best treatment options for you. It's important that you continue to express any concerns you may have and talk with your doctors about your personal goals and expectations for epilepsy surgery.https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/surgery/goals-and-expectationsIt is also important to remember when preparing for epilepsy surgery that every individual experience and path is different. Review our list of commonly asked questions about epilepsy surgery, learn more about the recovery process and common themes for people living with epilepsy & family members during their journey through epilepsy surgery, here: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/surgeryThere are several different types of surgery that are available to treat people still having seizures after trying medications, or other therapies and if their seizures are uncontrolled. To learn more about various types of epilepsy surgery and questions to review with your healthcare team, please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/surgery/types-epilepsy-surgery To learn more about the VNS device please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/devices/vagus-nerve-stimulation-vns Additionally, you may always contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support. epilepsy.com/helpline Or contact your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community.