Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Viral infection
Sat, 08/10/2019 - 04:18Topic: Share Your Story
Hi I’m after a bit of advice or wondering whether anybody has shared a similar experience, my nephew is currently in hospital he is nearly 4 years old and about a week ago he suffered a number of seizures so was admitted into hospital since then he has had countless seizures and the doctors have told us he has epilepsy which has been brought on through his viral infection, our main concern is the seizures don’t seems to be wearing off as he’s having around 10 a day and this is with medication, thanks in advance
Comments
Hi Rex_5d4e7c4c7a38b, Thanks
Submitted by Anonymous on Mon, 2019-08-12 - 09:26
Hi Rex_5d4e7c4c7a38b, Thanks so much for posting, we understand this can be very scary and upsetting to experience. Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about epilepsy, what resources are available, how to make the most of doctors' visits, and how to take control of seizures & find self-management tools. Learn more, by visiting: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsy My seizure diary can be used to identify & track seizures, record his medical history, medications, side effects, moods, triggers, or other personal experiences, which can be shared with his healthcare team. To learn more, please visit: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary For assistance finding an epilepsy specialist near you, or for a second opinion, please visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist www.naec-epilepsy.org https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinions Additionally, our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000, contactus@efa.org, can assist in connecting you to resources, provide referrals and additional support. epilepsy.com/helpline Or by contacting your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community.
Did the doctors ever mention
Submitted by birdman on Sat, 2019-08-10 - 22:13
Did the doctors ever mention the type of viral infection? Did they say anything about encephalitis? My seizure are the result of an infections they called encephalitis that I had when I was just six months old. I think this is one of the more difficult types of epilepsy to control. He definitely needs to be seen by a neurologist. And if the seizures continue someone should ask to have it checked by an epilepsy specialist. Keep track of the seizures and the medications he tries. This is valuable information for the specialist who could suggest alternative treatments.