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Unfortunate Newbie
Wed, 12/04/2019 - 07:23Topic: Share Your Story
I am 59 and recently had back to back Tonic-clonic seizures and a few focal aware seizures. I have never had a seizure before, at least not that I aware of. At the time I was taking 1000mg Depakote ER per day for migraines. My Neurologist took me off Depakote and I am now on 25mg Lamotrigine (has me slowly working towards 100mg per day). He then put me on Emgality for my migraines. I hope that they don't happen again. Still wondering how this happened to me.
Hi, Thank you for posting. We
Submitted by Anonymous on Wed, 2019-12-04 - 10:03
Hi, Thank you for posting. We understand this must have been very scary and upsetting for you to experience. Epilepsy and seizures can develop in any person at any age. Factors such as other health conditions, age, and race may make developing epilepsy and seizures more likely. It’s important that you continue follow-up with your healthcare team to determine what individual treatment plan is best for you and if you experience any changes in side effects, seizure types, frequency, behaviors and symptoms. If you have not already, you may want to consider seeing an epileptologist (epilepsyspecialist). For assistance finding a specialist near you, please visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about what epilepsy is, what resources are available, how to make the most of doctors' visits, and how to take control of seizures, seizure first aid& safety. Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsyYou may want to consider keeping a journal or a seizure diary. My Seizure Diary can help identify & track seizures, record medical history, set reminders,manage medications, side effects, moods, behaviors, recognizing triggers and health events that may affect seizures and wellness, which can be shared with your healthcare teamhttps://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary Review our seizure alert device factsheet with your doctor to see if a seizure alert device is an option you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdf Sometimes it's helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find &give support to each other. Contact your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community. Or contact our Epilepsy and Seizures 24/7 Helpline: epilepsy.com/helplinewhere trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org.