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Time in between episodes

I have noticed the time between when I have episodes getting shorter. My first one was in 2011 and it was followed by a second one and hour after the first. I then went six years off meds and had another at home before work which was followed by another and hour or so later. I went a year off meds and had nothing till about two months ago I felt off called family and had another one. Followed by two more the same day. I’m now on keppra and take 2000 mg a day. Made it 2 months and just had another grand mal this past weekend but only one. I don’t know what to do I feel like a burden on my family I’m confused and frankly scared please any one with a similar story reach out to me. I hate how these meds make me feel

Comments

Hi Struck90,  Thanks so much

Hi Struck90,  Thanks so much for posting, we understand this can be very scary and upsetting to experience. Treatment varies for each individual. It’s important that you continue follow-up with your healthcare team to determine what individual treatment plan is best for you and if you continue to experience any changes in seizure frequency, types, side effects, seizure behaviors and symptoms. For assistance and information regarding finding a specialist, or a second opinion please visit:https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/se... https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist  It’s important to remember that you're not alone. However, we know that being diagnosed with epilepsy can be upsetting and make you feel isolated. One of the most important things to help you live with epilepsy is to find a support network. It can be helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find & give support to each other. Learn more about your community support, here:support, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concernsAdditi..., you may also contact our Epilepsy and Seizures 24/7 Helpline:1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support. epilepsy.com/helplineYou may want to consider keeping a seizure diary, or journal. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-... a great tool for not only tracking seizures, setting reminders, recording your medical history, medications, side effects, moods, behaviors & triggers, which can be shared with your healthcare team. You can also create a Seizure Response Plan or Action Plan: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms  which is a helpful tool for those who are close to you to understand what do if you have seizure. Review our seizure alert device factsheet with your doctor, to see if a seizure alert device is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Ale... 

I went through something very

I went through something very similar. I started having seizures when I was around 14 back in 2010. During that time I followed the whole "Real men don't cry" thing so I essentially bottled up all my emotions and kept a smile on my face while deep down I was thinking of taking my own life. I was also on Keppra at the time so that could possibly be the issue. My advice would be to switch medications and perhaps seeing a therapist. I only saw a therapist one time but he told me "You may feel like a burden to your family, but your family would rather keep you as a burden, than lose you as a son."

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