Chat and Community Forums Closed

Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

TBI 2 years ago. Epilepsy picked up today.

I have been in a fire in 2018 that caused inhalation of pretty toxic stuff. I fainted, sustained TBI and been sick/off work since then. Had pretty weird symptoms but nobody really investigated til now. Today my EEG results came back positive for seizure activity. So i am pretty scared and have no clue. Need to see Neuro/Epileptiologist to sort seizures out. Diagnosis would explain a lot. I am so light and noise sensitive and cant stand crowds or too much movement around me. So i am pretty housebound. Often i cant walk if too much is going on around me. I feel i "space out" and if i dont leave the situation i faint or my legs just fail.
Well anyway. Great to have this forum to alleviate some of this anxiety i feel right now.


Hi, Thank you for posting, it

Hi, Thank you for posting, it sounds like you’ve been through a lot. We are happy to hear that you’re going to follow-up with neurologist or epileptologist for further diagnostic testing and to determine what individual treatment plan is best for you. For assistance finding a specialist near you, please visit: new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about what epilepsy is, what resources are available, how to make the most of doctors' visits, and how to take control of seizures, seizure first aid & safety. Learn more here: may want to consider keeping a journal or diary. My Seizure Diary: great tool for identifying & tracking seizures, setting reminders,managing medications & side effects, recording medical history, moods, behaviors, triggers,and other personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. Additionally, you may always to contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

24/7 helpline