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Simple partial (or focal) seizures on EEG

Hello,
I would like input into your experiences of how likely it is to find activity of simple partial ( or focal) seizures on EEG? As I get mixed reviews on this. For instance would video EEG be able to tell with almost certainty if someone has these types or seizures or not?
I am disappointed to hear that so many people with these types of seizures that are not detected on EEG then get diagnosed with NES. Could you please give your experiences.

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Our child has had a 90min, a

Our child has had a 90min, a three hour and a five day EEG without catching a partial. Some partials are too deep (some people will never show anything on regular EEGs, some can see stuff if they add those leads that go in your nose, our child’s neurosurgeon, who is the epilepsy guy to see for a few states around, says even iEEG are really dependent on placement), some seizures are not strong enough to show up, and sometimes there just isn’t one during an EEG. There is activity associated with partial seizures that may show up, we’ve seen that. Still, even without seeing a seizure on EEG, the history and reports of events after starting medication (and increases where we didn’t tell our child the dose changed) were all consistent with partials. Still, seeing the generalized seizures show up on EEG after many years was a surprise (we were looking for partials but the frequency wasn’t quite enough to show up even with the fast wean, the generalized seizure activity was becoming nonstop as med levels lowered). That’s why working with a neurologist who specializes in epilepsy is just better because they know more about the different presentations and testing limitations.

Hello Amy JoThank you for

Hello Amy JoThank you for your reply.  The reason why I ask is because j our child 9 years old has had a 3 day video eeg and we were allowed to leave the hospital told the report would be ready in 3 weeks. I suspect they didn't see any activity of concern as we were not told anything.  A little background our son has been having funny smells (usually burning rubber or something disgusting) he feels like he's on a roller coaster or elevator where it feels like a funny feeling going from his stomach to his throat.  He also has macropsia and micropsia which I'm told are visual hallucinations. He gets headaches and dizziness but not sure that this is part of seizures. Epilepsy runs in the family but the grand mal seizures which one person has unfortunately died from.  

Hello Amy JoThank you for

Hello Amy JoThank you for your reply.  The reason why I ask is because j our child 9 years old has had a 3 day video eeg and we were allowed to leave the hospital told the report would be ready in 3 weeks. I suspect they didn't see any activity of concern as we were not told anything.  A little background our son has been having funny smells (usually burning rubber or something disgusting) he feels like he's on a roller coaster or elevator where it feels like a funny feeling going from his stomach to his throat.  He also has macropsia and micropsia which I'm told are visual hallucinations. He gets headaches and dizziness but not sure that this is part of seizures. Epilepsy runs in the family but the grand mal seizures which one person has unfortunately died from.  

The other thing is he gets

The other thing is he gets fearful and cold shivers for no reason.  All of this lasts no more than 2 minutes.

I've had epilepsy since 1997

I've had epilepsy since 1997 and have had many VEEG's. and on all of them they find nothing.  Just had a 7 day VEEG and no activity at all.  I had 2 seizures back to back within 15 minutes. Called my doctor of 15 years and ordered another one and same results.  I told her something wasn't right and told her the symptoms, i asked her to take me off meds so I would have one so they can finally get the info needed and she said no,  then she prescribe me another medication.  Getting a second opinion.

Those episodes could be

Those episodes could be seizures (everyone with partials varies, depending on where in the brain the partials occur/travel). Know that partials can generalize but not everyone with partials will have tonic clonics (my child hasn’t had a tonic clonic so far). I think once I realized our child had funny smells no one else could smell that was when I really accepted that seizures were the likely explanation (had already done an EEG at that point, didn’t get results showing epilepsy related activity until after that but it was only some spikes).

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