Should I vaccinate my baby that has seizures

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Hello, I'm new to this group, I just wanted to ask if anybody has experience what I'm going thru So my baby started having seizures a few hours after he was born. He was born, and hear rate, pulse, oxygen level, basically he passed a the check up the pediatrician usually checks for during the 1st hour of life, then he rcvd his heb b vaccine. It was about maybe an hour after his heb b vaccine he started showing seizures symptoms. My son would hold his breath, whole body stiffens up and lips would turn blue from holding his breath. My son was put on phenobarbital first which it didn't control his seizures, so the DR added keppra to control his seizures, and then thy decided to sedate my baby with a med call Versed to help him with the ongoing seizures. After maybe 2 wks in nicu, his seizures were under control and he was off sedation. He was in nicu for 21 days, we went home with phenobarbital and keppra, his seizure started again a few days we came home and we went back to hosp and now he is on topamax as well. Which seem to be helping now. My son was due for his 2 month vaccine. Which I told his Dr. Not right now. I'm afraid it may trigger his seizures to start again. I just wanted to ask parents out there to see how was your experience allowing vaccines to your child that had seizure or not allowing vaccines to your child Btw, the neurologist said my son has complex partial seizures. The neurologist stated that vaccines are whats recommended but he cannot guarantee vaccines will not trigger my son seizures again. So I'm really unsure what to do

Comments

Btw. I forgot to add. My son

Submitted by h_choua@yahoo.com on Tue, 2019-12-03 - 02:25

Btw. I forgot to add. My son did all the genetic testings available for seizures + mitochondria. All was negative

Hi, Thank you for posting, we

Submitted by Anonymous on Tue, 2019-12-03 - 10:02

Hi, Thank you for posting, we understand this must be very upsetting and scary for your all to experience. We cannot determine if this vaccine will trigger a seizure, or not. It’s best that you continue to consult with your son’s healthcare team to determine what is best for him and his individual treatment plan. If you have not already, you may want to consider having your son see an epileptologist (epilepsy specialist). For assistance finding a specialist near you, please visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about epilepsy, what resources are available, how to make the most of doctors' visits, and how to take control of seizures, seizure first aid & safety, & find self-management tools.Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsyTo learn more about the medications your son is taking, possible side effects or interactions, please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicinesYou may also want to consider keeping a diary or a journal. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for not only tracking seizures, but recording his medical history, setting reminders, managing medications, side effects, moods, triggers, which can be shared with his healthcare team. It’s common for those who are in caretaker role to feel overwhelmed. It’s important to remember that you are not alone, and it is just as important to make sure you’re taking care of yourself as well.https://www.epilepsy.com/living-epilepsy/parents-and-caregivers It can be helpful to connect with other parents who may have similar experiences, to ask questions, find & give support to each other, by visiting: https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline

Hi, Thank you for posting, we understand this must be very upsetting and scary for your all to experience. We cannot determine if this vaccine will trigger a seizure, or not. It’s best that you continue to consult with your son’s healthcare team to determine what is best for him and his individual treatment plan. If you have not already, you may want to consider having your son see an epileptologist (epilepsy specialist). For assistance finding a specialist near you, please visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about epilepsy, what resources are available, how to make the most of doctors' visits, and how to take control of seizures, seizure first aid & safety, & find self-management tools.Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsyTo learn more about the medications your son is taking, possible side effects or interactions, please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicinesYou may also want to consider keeping a diary or a journal. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for not only tracking seizures, but recording his medical history, setting reminders, managing medications, side effects, moods, triggers, which can be shared with his healthcare team.  It’s common for those who are in caretaker role to feel overwhelmed. It’s important to remember that you are not alone, and it is just as important to make sure you’re taking care of yourself as well.https://www.epilepsy.com/living-epilepsy/parents-and-caregivers  It can be helpful to connect with other parents who may have similar experiences, to ask questions, find & give support to each other, by visiting:  https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents  Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline

Hi, Thank you for posting, we understand this must be very upsetting and scary for your all to experience. We cannot determine if this vaccine will trigger a seizure, or not. It’s best that you continue to consult with your son’s healthcare team to determine what is best for him and his individual treatment plan. If you have not already, you may want to consider having your son see an epileptologist (epilepsy specialist). For assistance finding a specialist near you, please visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about epilepsy, what resources are available, how to make the most of doctors' visits, and how to take control of seizures, seizure first aid & safety, & find self-management tools.Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsyTo learn more about the medications your son is taking, possible side effects or interactions, please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicinesYou may also want to consider keeping a diary or a journal. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for not only tracking seizures, but recording his medical history, setting reminders, managing medications, side effects, moods, triggers, which can be shared with his healthcare team. It’s common for those who are in caretaker role to feel overwhelmed. It’s important to remember that you are not alone, and it is just as important to make sure you’re taking care of yourself as well.https://www.epilepsy.com/living-epilepsy/parents-and-caregivers It can be helpful to connect with other parents who may have similar experiences, to ask questions, find & give support to each other, by visiting: https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline