Shaking All Over

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I'm a 25yo university student with tonic clonic/grand mal seizures that are triggered by lack of sleep and stress. I know, what a great combo right? Buuuuuuut there's no one to talk to. Campus counsellor requested a therapist that deals with epilepsy but it's way too expensive. I'm the only person I know with epilepsy. No family history, no friends, classmates, nada. My boyfriend tries incredibly hard and is very patient, he's amazing. But he's never encountered this either. My medication causes depression and severe mood swings. Not the worst, but not that great. If it's been too long without an episode I'm terrified, worried that I'll have one at work or school or crossing the road. I'm afraid to leave the house. I have nightmares about it. The depression is getting worse, and I'm worried that it's not a side effect anymore. I'm angry all the time and break down at the drop of a hat. I'm completely convinced I'm a burden. Between work and school and medication, I have no time or money for therapy, support groups, or 'me-time'. My life is one great big ball of stress, sadness, debt and, as I like to call them, horizontal fish flops. But seriously, I'm incredibly depressed, very lonely and very sad. What's a girl to do?

Comments

Hi!I decided that I was going

Submitted by LMacShara on Wed, 2018-06-06 - 08:07

Hi!I decided that I was going to start sharing my stories and helpful tips with people and saw you had no responses yet so here goes nothing!I am 27 years old and also suffer from the same type of seizures, and triggers as well, so your story sounds quite a bit like my own.I totally understand about your nervous feelings when you leave the house, because I've suffered many seizures in public places, the workplace, school, you name it, and it's horrible waking up like you're on display. Trying many different changes in my life seems to be turning things around for me in all of the categories you mentioned above.If you'd like to e-mail me, I'd love to talk more! My e-mail address is l.macshara@gmail.com and I think it would be a great idea for us to brainstorm.Hoping to talk to you soon :-)Just remember, you're never alone <3

I am in the same exact boat

Submitted by kristinspringman on Wed, 2018-06-06 - 18:10

I am in the same exact boat as you, are stories are almost similar to a T. I am so sorry you are going through this. I had my first grand mal this April, and since then have had 2 panic attacks thinking I was going to have another; the worst being this morning. I was debating on getting anti seizure medication, and think I would like to get on it to give me peace of mind. I had no idea it could cause depression. I don’t know if this is legal in your area, but is there any chance you could try medicinal marijuana? If I could I would. Or maybe CBD oil. I suppose it wouldn’t hurt to try? Don’t give up! We can’t let seizures get in the way of ruining our lives.

I am in the same exact boat

Submitted by kristinspringman on Wed, 2018-06-06 - 18:11

I am in the same exact boat as you, are stories are almost similar to a T. I am so sorry you are going through this. I had my first grand mal this April, and since then have had 2 panic attacks thinking I was going to have another; the worst being this morning. I was debating on getting anti seizure medication, and think I would like to get on it to give me peace of mind. I had no idea it could cause depression. I don’t know if this is legal in your area, but is there any chance you could try medicinal marijuana? If I could I would. Or maybe CBD oil. I suppose it wouldn’t hurt to try? Don’t give up! We can’t let seizures get in the way of ruining our lives.

Shaking All Over

Comments

Hi!I decided that I was going

Submitted by LMacShara on Wed, 2018-06-06 - 08:07

I am in the same exact boat

Submitted by kristinspringman on Wed, 2018-06-06 - 18:10

I am in the same exact boat

Submitted by kristinspringman on Wed, 2018-06-06 - 18:11

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