Seizures Since 9: Medications & Brain Surgery - Left Temporalobectomy

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I've had seizures, partial/petit mal mostly and some grand mal since age 9. I am almost 34. The famous Dr. Benjamin Carson removed a part of my brain, left temporal lobe, in 2004. Seizures stopped for 6 months...then returned. In my opinion, doctor's cannot cure them and medicine cannot prevent them. Over the years I've only become depressed from side effects and the limits with these seizures. I can hold a job anymore. When employers find out I have disabilities or the symptoms happen to occur, which I cannot hold back sometimes within the workforce then my supervisor wants me to leave. I now just want to die. There's no hope. All my dreams as a child have perished because of these seizures which led to depression, social anxiety, and paranoia. Nothing is left.

Comments

Hi jwk232002_5d523e4cf1819,

Submitted by Anonymous on Tue, 2019-08-13 - 09:58

Hi jwk232002_5d523e4cf1819, Thanks for reaching out, it sounds like you’ve been through a lot. It’s important to remember that you NOT alone and that we do have resources available that can help. If you ever need to speak with someone immediately, please contact our 24/7 toll-free helpline: 1-800-332-1000, https://www.epilepsy.com/living-epilepsy/247-helpline or by calling the national suicide prevention lifeline: 1-800-273-8255, https://suicidepreventionlifeline.org/ Please continue follow-up with your healthcare team to express your concerns and discuss your feelings of depression and anxiety, as well as,side effects, seizure types, changes in behaviors and symptoms. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdfOne of the most important things to help you live with epilepsy is to find support network. Learn more about your community support, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns It is also important to recognize that epilepsy is more than just seizures,overall well-being and emotional health is just as important: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health It is common for those living with epilepsy to experience feelings of depression & anxiety: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health/overview-depressionhttps://www.epilepsy.com/learn/challenges-epilepsy/moods-and-behavior/mood-and-behavior-advanced/anxiety-disordersThe Wellness Institute: epilepsy.com/wellness ,has many helpful and easy-to-use tips &resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family. For practical & effective strategies to enhance your well-being, learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools For more information about your legal rights & employment please visit: https://www.epilepsy.com/living-epilepsy/legal-help/your-legal-rightshttps://www.epilepsy.com/living-epilepsy/independent-living/employment-help-what-you-need-know

Hi jwk232002_5d523e4cf1819, Thanks for reaching out, it sounds like you’ve been through a lot. It’s important to remember that you NOT alone and that we do have resources available that can help. If you ever need to speak with someone immediately,  please contact our 24/7 toll-free helpline: 1-800-332-1000,  https://www.epilepsy.com/living-epilepsy/247-helpline or by calling the national suicide prevention lifeline: 1-800-273-8255, https://suicidepreventionlifeline.org/  Please continue follow-up with your healthcare team to express your concerns and discuss your feelings of depression and anxiety, as well as,side effects, seizure types, changes in behaviors and symptoms. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdfOne of the most important things to help you live with epilepsy is to find support network. Learn more about your community support, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns It is also important to recognize that epilepsy is more than just seizures,overall well-being and emotional health is just as important: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health  It is common for those living with epilepsy to experience feelings of depression & anxiety: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health/overview-depressionhttps://www.epilepsy.com/learn/challenges-epilepsy/moods-and-behavior/mood-and-behavior-advanced/anxiety-disordersThe Wellness Institute:  epilepsy.com/wellness   ,has many helpful and easy-to-use tips &resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family.  For practical & effective strategies to enhance your well-being, learn more here:  https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools  For more information about your legal rights & employment please visit: https://www.epilepsy.com/living-epilepsy/legal-help/your-legal-rightshttps://www.epilepsy.com/living-epilepsy/independent-living/employment-help-what-you-need-know 

Hi jwk232002_5d523e4cf1819, Thanks for reaching out, it sounds like you’ve been through a lot. It’s important to remember that you NOT alone and that we do have resources available that can help. If you ever need to speak with someone immediately, please contact our 24/7 toll-free helpline: 1-800-332-1000, https://www.epilepsy.com/living-epilepsy/247-helpline or by calling the national suicide prevention lifeline: 1-800-273-8255, https://suicidepreventionlifeline.org/ Please continue follow-up with your healthcare team to express your concerns and discuss your feelings of depression and anxiety, as well as,side effects, seizure types, changes in behaviors and symptoms. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdfOne of the most important things to help you live with epilepsy is to find support network. Learn more about your community support, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns It is also important to recognize that epilepsy is more than just seizures,overall well-being and emotional health is just as important: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health It is common for those living with epilepsy to experience feelings of depression & anxiety: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health/overview-depressionhttps://www.epilepsy.com/learn/challenges-epilepsy/moods-and-behavior/mood-and-behavior-advanced/anxiety-disordersThe Wellness Institute: epilepsy.com/wellness ,has many helpful and easy-to-use tips &resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family. For practical & effective strategies to enhance your well-being, learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools For more information about your legal rights & employment please visit: https://www.epilepsy.com/living-epilepsy/legal-help/your-legal-rightshttps://www.epilepsy.com/living-epilepsy/independent-living/employment-help-what-you-need-know

i had grand mal sezuires for

Submitted by juliev123 on Wed, 2019-08-14 - 16:12

i had grand mal sezuires for 9 months (12 in all) that were serious danger to my life; My consulatant made my Gp stop me being prescribed Pregaablin and I have not had any seizures since,. Please take care xx

I feel for you, truly - my

Submitted by 1994-JDS-Now on Sun, 2019-08-18 - 18:25

I feel for you, truly - my son has had seizures since about age 14, he's now 36; doctors were talking about that same surgery but he has decided not to "chance" it, as he says. Your post sounds a lot like what I hear from him, and he's very depressed as well, hardly goes out of the house, cannot work, etc. Try to see yourself as worth the time to take care of yourself. Keep your head up!