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Reflex Epilepsy from Heat!

Wed, 01/31/2018 - 01:15
Hello Everyone! My name is Mike! I've had Epilepsy for about 23 years now, since I was 10 and a half years old. We don't completely know what caused me to have seizures but we have a clue that a 106 degree fever a month before I had my first known seizure which was during Spring Break when I was in the 6th grade. I was as healthy as can be, playing on a baseball for 5 years and a football team for 2 years and then was assistant manager on the team after I started having Epilepsy. Also played in the band until I had to quit because I was always passing out while playing the Tenor Saxophone. But it was up til about a year ago I and after going to more neurologists than I can count, I realized that I have seizures mostly because of getting overheated. Every now and then I'll have one by getting excited. When I played football and baseball I would pass out on the pitchers mound a good bit later in the game if we played long games and I played multiple positions in pee-wee football which were Tight-end and kicker. While during practice I would usually have more seizures there because I would play as a linebacker but I wasn't the biggest and fastest one at the time. I also played street hockey and street basketball but hardly ever had seizures playing those sports. I grew up not only with Epilepsy but with PTSD, panic attacks and being abused in 3 ways and several other things. But does anyone else have seizures from being overheated from being around heat to long? I.E. Take a very hot shower, being in the sun, being overworked, being around hot food too long, like I do? I've lived through 2 SUDEP situations already.

Comments

Common manifestations of

Submitted by just_joe on Thu, 2018-02-01 - 16:41
Common manifestations of acquired reflex epilepsy are startle seizures,expressed as sudden myoclonic or tonic contraction of the truncal and extremity musculature. Startle seizures can be triggered by somatosensory, auditory, or proprioceptive (movement) stimuli.somatosensory relating to or denoting a sensation (such as pressure, pain, or warmth) that can occur anywhere in the body.SO yes getting hot fast can cause a seizure in some people

I'm on my 6th Neurologist if

Submitted by CrazyMikey on Thu, 2018-02-01 - 17:07
I'm on my 6th Neurologist if I remember right. All have never mentioned reflex epilepsy or startle seizures. Out of the hundreds of People I work with in a hospital, none of them have ever heard of it either. lol :-)

use your search engine and

Submitted by just_joe on Thu, 2018-02-01 - 18:57
use your search engine and type in reflex epilepsy. Almost everything I posted were brought upI have seizures if I get to hot to fast. So I watch the time I am out in the sun working and do watch the time I cook in the kitchen. I have lived in areas of this country where it gets 105 in the shade and it didn't bother me until I was older. Like in my mid thirties.The most common type is photosensitive seizure. Which is light hitting the eyes causing the seizure. With you it is heat for others it can be a sound.

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