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Parents dealing with my epilepsy
Sat, 05/18/2019 - 20:21Topic: Share Your Story
I was diagnosed officially three months ago with absence seizures along with epilepsy. Since then I would have a seizure every 15-25 days. My last three seizures have been while sitting in the passenger seat of my dad’s car while he is driving, in motion. These last for 30 seconds to 1 minute, and then I snap out of it and don’t remember a thing. Overall, I feel somewhat fine after the seizures except for a little headache on my left temple (where the EEG results show an abnormality for epilepsy). Other than that I feel fine.
My dad is always more worried about these episodes, and gets worked up over them while I stay calm and collected. He is the only one that lives with me, but has to tell my brother and his ex-wife (my mom) who then get worked up over all of this too. I get kinda embarrassed after he keeps asking and talking about these seizures, to the point where I want to hide from him the rest of the day. Does anyone else have a similar story? What should I do or tell them?
Comments
1. My Child suffered the
Submitted by prateek on Mon, 2019-05-27 - 08:05
1. My Child suffered the first Epilepsy Attack at an age of 10 in his school. Since then our lives changed. Weused to live in constant fear of Seizures and this continued for years. When he was 19, he himself found about Neeraj Clinic through online search. We went to their clinic in Rishikesh. After proper check-up, the doctor prescribed us afew medicines. In a span of 7 months we noticed a substantial decline in the occurrence of Seizures. Neeraj Clinic came in as sunshine in our lives. Will suggest youto pay them a visit. If you have been failing in finding the right treatment for Epilepsy, try contacting Neeraj Clinic. I am sharing with you their ContactDetails - +91-6395048809. You can also Whatsapp them on the same number.Website - https://www.epilepsytreatment.org/
Hi ocdrums12, Thank you for
Submitted by Anonymous on Mon, 2019-05-20 - 09:55
Hi ocdrums12, Thank you for sharing your story, it sounds like you have a great support system! The Wellness Institute, https://www.epilepsy.com/living-epilepsy/our-programs/wellness-institute, provides tools and strategies to better assist you and provide support for your family as well. For additional information for family members & caretakers please visit , https://www.epilepsy.com/living-epilepsy/parents-and-caregivers & https://www.epilepsy.com/living-epilepsy/healthy-living/stress-and-wellness/managing-stressSometimes it's helpful to connect with other people who live with epilepsy or care for someone with epilepsy, to ask questions, share experiences, find & give support to each other, by contacting your local Epilepsy Foundation at, epilepsy.com/localsupport & www.epilepsy.com/affiliates , to find support groups, events, and programs in your community. If you, or your family has additional questions, please contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000, contactus@efa.org , epilepsy.com/helpline , where a trained information specialist can connect you to resources, provide referrals and additional support.Additionally, you and your family may want to consider along with her doctor, having a device that can help track seizures by visiting, https://www.dannydid.org/ , and by keeping a seizure diary, https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary , as another self-management tool. These tools may be helpful in managing medication & other therapies,identifying & tracking seizures, other symptoms, recognizing triggers and health events that may affect seizures and wellness, which can be shared with your healthcare team. https://www.epilepsy.com/learn/managing-your-epilepsy