Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
No help for people with CBD Prescription
Sat, 06/01/2019 - 15:04Topic: Share Your Story
I live in Ga., My son lives in East Tx. My son is now 44 years old. As a kid he was diagnosed with Petit Mal absence seizures. Three years ago he started having Grand Mal seizures. I think he's been on every known med. So I helped him pay for a neurologist visit, she prescribed him CBD three months ago. But he is waiting for Social Security to approve him,
he has no money to pay for it, has no insurance and I'm on disability myself. I must have called everyone in Tx., to help him pay for his prescription. Nobody will help. Everybody just keeps passing the buck and he's having seizures weekly. He is currently taking 20/ mg of Vimpat. The side effects really bother him and it don't work. Any suggestions cause I'm worried out if my mind. Medicaid will not help.
Comments
I'm sorry your son is
Submitted by g40-011 on Sat, 2019-06-01 - 16:52
I'm sorry your son is suffering. I too take vimpat for my seizures and it makes me feel very ill. I also take cannabis it helps a lot. By CBD prescription I'm guessing you mean epidiolex or synthetic cbd? For the price of one month of CBD in a bottle you can pay for a medical marijuana card and be able to buy real cbd at a dispensary for much less. Not only is it cheaper there is some science explaining why cbd made in a lab isn't as effective as something extracted from the plant. https://www.projectcbd.org/science/terpenes-and-entourage-effect Plus, this May Texas just made getting medical marijuana a little easier: https://www.wikileaf.com/thestash/medical-cannabis-is-becoming-more-accessible-in-texas/ I wish you and your son the best, feel free to ask me anything
Hi Worriedoutofmymind, Thanks
Submitted by Anonymous on Mon, 2019-06-03 - 09:33
Hi Worriedoutofmymind, Thanks so much for posting, we understand this can be a very frustrating and expensive process. For more information regarding our patient assistance programs please visit, https://www.epilepsy.com/living-epilepsy/247-helpline/patient-assistance , or contact the Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000, contactus@efa.org. For information regarding insurance appeals please visit, www.patientadvocate.orgAdditionally your local Epilepsy Foundation, epilepsy.com/localsupport ,can assist in connecting you to resources, support groups, events, and programs in your community.Your son may want to consider with his neurologist having a device that can help track his seizures, by visiting, https://www.dannydid.org/ and by keeping a seizure diary https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary ,as another self-management tool. These tools may be helpful in identifying & tracking seizures, other symptoms, managing medication & other therapies, recognizing triggers and health events that may affect seizures and wellness, which he can share with his doctor. For more information regarding seizure medications & side effects please visit, https://www.epilepsy.com/medications/lacosamide , https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effects & https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/other-treatment-approaches/medical-marijuana-and-epilepsyAs a caretaker, https://www.epilepsy.com/living-epilepsy/parents-and-caregivers ,it’s just as important to make sure you’re taking care of yourself as well. https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20factsheet.pdfThe Wellness Institute, https://www.epilepsy.com/living-epilepsy/our-programs/wellness-institute provides tools and strategies to better assist your loved one and support you in your important role.
That should read he's taking
Submitted by Worriedoutofmymind on Sat, 2019-06-01 - 15:05
That should read he's taking 200 mg a day of Vimpat sorry.