Chat and Community Forums Closed

Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

A Newbie...unfortunately

In all of my life (58yrs) I would never think this would happen to me...but it did over the weekend. I have been taking two different anti seizure medications for migraine headaches and my back pain (Divalproex ER & Neurontin) but they didn't stop me from having 2 Tonic-Clonic seizures back to back on Friday. After everything was done it took me almost 24hrs to recover. My neurologist told me to go to the ER. Lots of tests. The doctors at the hospital told me to up my Divalproex ER to 3-500mg per day and see my neurologist when I get home. The people at the Denver hospital were great. I hope to see my neurologist sometime this week.
Is it unusual for a person my age to start having these kind of seizures?

Comments

Hi Dizzyagain, Thanks so much

Hi Dizzyagain, Thanks so much for posting, we understand this can be very scary and confusing to experience. Treatment varies for each individual. It’s important that you continue follow-up with your healthcare team to determine what individual treatment plan is best for you and if you experience any changes in side effects, seizure types, frequency, behaviors and symptoms. For assistance and information regarding finding a specialist, or a second opinion please visit:https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/se... https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist  Epilepsy and seizures can develop in any person at any age. Factors such as other health conditions, age, and race may make developing epilepsy and seizures more likely. https://www.epilepsy.com/learn/about-epilepsy-basics/who-gets-epilepsyOur new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about what epilepsy is, what resources are available, how to make the most of doctors'visits, and how to take control of seizures, seizure first aid & safety. Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsy  You may want to consider keeping a diary, or a journal. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-... a great tool for not only tracking seizures, but recording medical history, medications, side effects, moods, behaviors& triggers, which can be shared with your healthcare team. My Seizure Diary also helps you remember what to do - you can have reminders of when to take your medicines, when to refill a prescription, or when you have medical appointments or tests. Additionally, you may want to review our seizure alert device factsheet with your doctor, to see if a seizure alert device is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Ale... may always contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources,provide referrals and additional support.epilepsy.com/helpline    

Did the seizures leave you in

Did the seizures leave you in any pain?

After the seizures I had

After the seizures I had muscle & joint pain but that slowly went away over the next 24hrs.

Hi Dizzyagain, you may want

Hi Dizzyagain, you may want to read what I posted in response to LizLoveCheerios' post on 10/2019.I am 55 years old with a long history of epilepsy though I have not taken any medication since I was 10 years old.  I had 1 Focal Impaired Aware Seizure (grand mal) when I was age 10, and monthly Focal Aware Seizures (petit mal) until I was age 16.  Since then I've been Seizure free from both of these type of seizures and still not any meds.Now that I'm 55, my symptoms have changed and I'm having Myoclonic seizures, which are uncontrollable muscle spasms when I'm trying to sleep which leads to sleep deprivation.  Good thing is that these seizures only occur when I come in contact with non-food items that contain Calcium Carbonate (read my post to Liz for more info) and 1 incident of Calcium Carbonate related to a food item (I had cooked a cheeseburger and accidentally charred the meat, thus Cheese = Calcium and Charred food = Carbon) Here's my theory as to what is causing my high sensitivity to Calcium Carbonate: I want to keep my Calcium level in the 9.4 range, though my body, whenever I have skin contact of non-food items or any food that contains Calcium Carbonate, my body absorbs the Calcium into my blood stream which triggers a Myoclonic seizure.I believe the reason why my body is 'hungry' for Calcium is because my body knows I have Osteoporosis.  Personally, I'd rather deal with Osteoporosis than Epilepsy.   I haven't yet tried the 2 Calcium pill with a single Magnesium pill routine to help the absorption of Calcium into my bones.  I read somewhere that Magnesium counters Calcium and at the same time it helps with calcium absorption.  Sounds contradictory, but that's what I read. BTW - I was in Denver's EMU (Epilepsy Monitoring Unit) just last month to prove to my neurologist my high sensitivity to Calcium Carbonate.  Sure enough, it triggered Myoclonic seizures for 3-4 hours over 3 nights straight.Good luck for all we Epileptics need it!Irma

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline
P