A Newbie...unfortunately

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In all of my life (58yrs) I would never think this would happen to me...but it did over the weekend. I have been taking two different anti seizure medications for migraine headaches and my back pain (Divalproex ER & Neurontin) but they didn't stop me from having 2 Tonic-Clonic seizures back to back on Friday. After everything was done it took me almost 24hrs to recover. My neurologist told me to go to the ER. Lots of tests. The doctors at the hospital told me to up my Divalproex ER to 3-500mg per day and see my neurologist when I get home. The people at the Denver hospital were great. I hope to see my neurologist sometime this week. Is it unusual for a person my age to start having these kind of seizures?

Comments

Hi Dizzyagain, Thanks so much

Submitted by Anonymous on Mon, 2019-09-30 - 09:24

Hi Dizzyagain, Thanks so much for posting, we understand this can be very scary and confusing to experience. Treatment varies for each individual. It’s important that you continue follow-up with your healthcare team to determine what individual treatment plan is best for you and if you experience any changes in side effects, seizure types, frequency, behaviors and symptoms. For assistance and information regarding finding a specialist, or a second opinion please visit:https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinions https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist Epilepsy and seizures can develop in any person at any age. Factors such as other health conditions, age, and race may make developing epilepsy and seizures more likely. https://www.epilepsy.com/learn/about-epilepsy-basics/who-gets-epilepsyOur new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about what epilepsy is, what resources are available, how to make the most of doctors'visits, and how to take control of seizures, seizure first aid & safety. Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsy You may want to consider keeping a diary, or a journal. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for not only tracking seizures, but recording medical history, medications, side effects, moods, behaviors& triggers, which can be shared with your healthcare team. My Seizure Diary also helps you remember what to do - you can have reminders of when to take your medicines, when to refill a prescription, or when you have medical appointments or tests. Additionally, you may want to review our seizure alert device factsheet with your doctor, to see if a seizure alert device is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfYou may always contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources,provide referrals and additional support.epilepsy.com/helpline

Hi Dizzyagain, Thanks so much for posting, we understand this can be very scary and confusing to experience. Treatment varies for each individual. It’s important that you continue follow-up with your healthcare team to determine what individual treatment plan is best for you and if you experience any changes in side effects, seizure types, frequency, behaviors and symptoms. For assistance and information regarding finding a specialist, or a second opinion please visit:https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinions https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist  Epilepsy and seizures can develop in any person at any age. Factors such as other health conditions, age, and race may make developing epilepsy and seizures more likely. https://www.epilepsy.com/learn/about-epilepsy-basics/who-gets-epilepsyOur new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about what epilepsy is, what resources are available, how to make the most of doctors'visits, and how to take control of seizures, seizure first aid & safety. Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsy  You may want to consider keeping a diary, or a journal. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for not only tracking seizures, but recording medical history, medications, side effects, moods, behaviors& triggers, which can be shared with your healthcare team. My Seizure Diary also helps you remember what to do - you can have reminders of when to take your medicines, when to refill a prescription, or when you have medical appointments or tests. Additionally, you may want to review our seizure alert device factsheet with your doctor, to see if a seizure alert device is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfYou may always contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources,provide referrals and additional support.epilepsy.com/helpline    

Hi Dizzyagain, Thanks so much for posting, we understand this can be very scary and confusing to experience. Treatment varies for each individual. It’s important that you continue follow-up with your healthcare team to determine what individual treatment plan is best for you and if you experience any changes in side effects, seizure types, frequency, behaviors and symptoms. For assistance and information regarding finding a specialist, or a second opinion please visit:https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinions https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist Epilepsy and seizures can develop in any person at any age. Factors such as other health conditions, age, and race may make developing epilepsy and seizures more likely. https://www.epilepsy.com/learn/about-epilepsy-basics/who-gets-epilepsyOur new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about what epilepsy is, what resources are available, how to make the most of doctors'visits, and how to take control of seizures, seizure first aid & safety. Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsy You may want to consider keeping a diary, or a journal. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for not only tracking seizures, but recording medical history, medications, side effects, moods, behaviors& triggers, which can be shared with your healthcare team. My Seizure Diary also helps you remember what to do - you can have reminders of when to take your medicines, when to refill a prescription, or when you have medical appointments or tests. Additionally, you may want to review our seizure alert device factsheet with your doctor, to see if a seizure alert device is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfYou may always contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources,provide referrals and additional support.epilepsy.com/helpline

Did the seizures leave you in

Submitted by Starboy on Mon, 2019-10-28 - 10:28

Did the seizures leave you in any pain?

After the seizures I had

Submitted by Dizzyagain on Mon, 2019-12-09 - 06:24

After the seizures I had muscle & joint pain but that slowly went away over the next 24hrs.