Chat and Community Forums Closed

Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

New to seizures

Hello Everyone,
I'm new here and learning so much on this EF website. I had my first Seizure in Sept. 2019. Being almost 50, it brings a new understanding to this life. I had a head injury when I was around 7-8 years old that resulted in a cracked frontal lobe on the right side of my head. Missing a few years of grade school. I find it funny how I remember the accident but not much else. Not remembering medicines other than for some headaches, so I don't really know if I had seizures when I was young. Has anyone heard of a seizure happening so much later in life?
Being new to all of this is some what scary. I have some knowledge of them due to friends of the past having Epilepsy. With that said,
It's all a new ball-game for me. I'm finding for the first time in my life that my favorite pastime is not available. (Driving) Not really wanting to go into detail of how things have been lately. I just know I need help getting a Doctors appointment and finding the right medicine(s) that will help. I've been on 3 different types and I'm concerned that life is going to get harder. Any information would be helpful on what to do next. Thanks for listening.

Comments

Hi, Thank you for posting. We

Hi, Thank you for posting. We understand this must have been very scary and upsetting for you to experience. Epilepsy and seizures can develop in any person at any age. Factors such as other health conditions, age, and race may make developing epilepsy and seizures more likely. It’s important that you continue follow-up with your healthcare team to determine what individual treatment plan is best for you and if you experience any changes in side effects, seizure types, frequency, behaviors, moods and symptoms. If you have not already, you may want to consider seeing an epileptologist (epilepsy specialist). For assistance finding a specialist near you, please visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about what epilepsy is, what resources are available, how to make the most of doctors' visits, and how to take control of seizures, seizure first aid& safety. Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilep... may want to consider keeping a journal or a seizure diary. My Seizure Diary can help identify and track seizures & triggers, record medical history, set reminders, manage medications, side effects, moods, behaviors, and personal experiences that may affect seizures and wellness, which can be shared with your healthcare team.https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-... Sometimes it's helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find & give support to each other. Contact your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates  to find support groups, events, and programs in your community. Or contact our Epilepsy and Seizures 24/7 Helpline: epilepsy.com/helplinewhere trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org

Hey!I didn't develop epilepsy

Hey!I didn't develop epilepsy until I was 18, it really can begin at any time of life. Mine was due to a tumour which had been there from birth but wasn't active until my teens. So yes, an underlying cause can be present but not active until a certain time, which is a scary thought. It's mad having to adapt your lifestyle to a sudden onset of seizures and I can totally empathise!I've recently written my first blog post about uni life with epilepsy. If you'd like to have a read here's a link to the site:danibeach0.wix.com/thebeachmentalityThe bit on coping strategies may be of use to you! As for what to do now, become familiar with your triggers and side effects, and try finding a new pastime - I've recently found a love for reading non-fiction which is great for journeys on public transport seeing as I haven't been able to drive for years.Hope this helps a little.Best wishes,Dani

Thanks Dani for the the

Thanks Dani for the the information, I will take a look at your website and I'm sure it will be helpful.  :)    I'm glad you find reading a relaxing.  I noticed some of the triggers but not sure if that is what they are.   Reading, on a computer or in a book has become a problem.  I have dyslexia, but over the years have learned to work beyond it.  Now with the seizures, it's an all new ball game.  It's like doing the dyslexia thing all over again but worse.  This time around Migraines happen.  Never had that issue either until now.  I have found a few things that I enjoy,  Paining, craft projects,music (listening/dancing), and sometimes writing, but they are something that I've done off and on through the years.Is it normal for sensory perception to change? Everything seems more intense.  Touch, hearing, smell, taste;  they all have increased for some reason.    Like touching a qwerty board is aggravating now, where I never even noticed it before.  My hearing has always been on the great side, but now ringing in the ears and  sounds are magnified even more.  Smell and Taste...  lets not go there. ha ha

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline
P