Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
New on here
Sat, 02/03/2018 - 17:46Topic: Share Your Story
Hi everyone, I am new on here but sadly not new to living life with epilepsy. I had my first seizure at the age of 11. I was diagnosed as having grand mal seizures. I am now 37 and I have been seziure free for 3 years. I came off my medication when I was 20 as I was pregnant with my first daughter. ( a decision I made myself) The reason why I write here is I whilst I have been sezuire free for a long time I live daily with a constant anxiety of having a seizure. I have 2 daughters now and a good job, and I really try and push myself to live a normal life. My question is to you all does having epilepsy affect you like this? Tiredness, feeling really hot and anxious in certain situations and just generally feeling really off and unable to concentrate. Has anyone else grown out of having seizures and how do they cope. Thankyou for taking the time to read.
Hello.I think the longer you
Submitted by Ryanth1 on Sun, 2018-02-04 - 09:02
Hello.I think the longer you go without a seizure the more the stress piles on. Because you know it is going to happen eventually. I deffinetly get anxious sometimes while in public places or when stressed. (Occipital lobe epilepsy).I just joined. Sorry not much help. I cope by knowing that if its going to happen its going to happen!!. I will not be embarrassed or ashamed if i have a seizure. Live your life.. you have 2 daughters so your going pretty good lol.. Have a good night.