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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

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My story

I was first diagnosed with epilepsy on August 27, 2010; apparently they lost me twice, no pulse, nothing. I remember seeing this bright light and a woman’s face that I feel like I had seen before and then next thing I know, I woke up in a hospital bed looking up and confused more than anything and I really don’t know how long I was out for, I cried non stop. The first medication I was on was lamictal and I liked it until one day I woke up with a full body rash and then after that I kept refusing medications up until the age of 16. I’m now 23 and out of all the neurologists I’ve had, they could never figure out what causes my seizures. I hate not knowing, I hate having it, I hate everything about it. Sometimes I feel like I would’ve been better off if they had just lost me for good from the very first time.

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

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