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My son is a Fighter

Tue, 12/19/2017 - 09:32
I have a 7 year old son who has had epilepsy since he was a day old. He also has cerebal palsy as well as being developmentally delayed.. As I wrote this we are in children's hospital of Philadelphia dealing with his frequent seizures and a upper respiratory infection. He is so strong to me because he was loaded with so many medications to subside his seizures that he had to be incabated ( I know I spelled it wrong), meaning the doctors sedated him and put a tube down his throat. Within the 24 hours of them doing that they were able to take the tube out and his seizures slowed down.. He also have sub clinical seizures frequently where I am never aware that he is having them. Right now he is at a high dose on all five of his seizure medications. Though my son is non verbal and can not walk he babbles, moves his arms and legs all around, and he also reacts through his eyes. Its hard to find a job because we are constantly back and forth to the hospital. I am fighting as we speak with SSI to put my son back on. They cut him off due to the fact I received an inheritance from my mother when she passed. This year has been rough for me, but I can't complain because my boy fights everyday to improve... That's my story, though I have blamed myself when he was younger, I realized I can not control what God has in store for him. I am having trouble with paying bills but I know with God's grace and mercy I will come out this storm. I have the best gift looking up to me and I will never fail him..

Comments

i send my greatest regards to

Submitted by isakerikss on Fri, 2017-12-29 - 00:13
i send my greatest regards to your son. keep on fightong, God is great.

I'm Sgt Laura Ralph from

Submitted by Lauraralph on Wed, 2018-01-03 - 08:44
I'm Sgt Laura Ralph from USAEmail me right now at(  sergeantlauraralph7@gmail.com )I have something very important to discuss with you there ok.

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