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My seizure journey

Hey guys, I’m a 17 year old girl and I’ve been suffering from epilepsy since 6th grade. So I was around 11 years old . I had my first seizure take place at school during lunch when I was outside with my friends. I fainted and hit my head on a rock then had a seizure. For 7th grade I transferred to a different school and had my second seizure there. Both times they were outside and I was sweating a lot but I still never found out the cause. My 3rd seizure took place at home and I was home alone I knew I had one. For some reason I always turn out to be on my left side during a seizure . Since then I was seizure free for 4 years then recently I had another one. I was home and my dad was there. I still don’t know the causes of my seizures and I’m going off to college next year which scares me. I’m currently taking Keppra . This medication takes a huge toll on my memory. It’s hard for me to study and memorize information for tests. It’s hard not knowing what causes them and it’s hard not finding out what I feel before having a seizure . I’ve recently realized that for the past 6 years I’ve been blanking out a lot at very random times and my doctor now diagnosed me with partial complex seizures on top of the tonic clonic seizures I’ve had. I hate not being able to drive and the constant worry of having a seizure. People have seen me have it unfortunately when I experienced them st school which made going to school a lot harder for me . I found this page a little bit ago and I’m happy I’m not the only one out there. We all are amazing people with amazing capabilities and intelligent and I hope nobody ever brings you guys down for your medical condition. We all hate it but there’s nothing we can do about it . I hope you all have a blessed day.


Hi 123abc157,Thanks so much

Hi 123abc157,Thanks so much for sharing your story, it sounds like you've been through a lot. It’s important that you express your concerns and any changes in seizure types, frequency, behaviors, side effects and symptoms to your healthcare team. It is common for those living with epilepsy to report having difficulties with thinking, memory &attention. Learn more about challenges with Epilepsy here: For more information regarding Keppra and side effects,visit: It is great that you’re taking the time to plan in advance. Planning ahead can help to lessen your risks, improve safety, and increase the chance of a successful college experience, both in and out of the classroom. For strategies, tips and resources for transitioning to college, visit: Epilepsy affects each person differently. As you plan for college, develop a personalized plan for managing your seizures and your learning needs. Learn more about managing your epilepsy here: Create a seizure response or action plan, which is a helpful tool for those close to you understand what do if you have a seizure: Tracking your seizures, record your medical history, medications,side effects, moods, or other personal experiences. using a diary:Learn how to live with seizures, potential risks and safety tips: Review our seizure alert device fact sheet with your doctor and family, to see if a seizure alert device is an option for you:  One of the most important things to help you live with epilepsy is to find a support network. Learn more about your community support, here:  It is also important to recognize that epilepsy is more than just seizures, overall well-being and emotional health is just as important:   The Wellness Institute:   ,has many helpful and easy-to-use tips & resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family.  For practical & effective strategies to enhance your well-being, learn more here: Additionally, you may contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000, where a trained information specialist can connect you to resources, provide referrals and additional   

Hi Camille i am from M'sia

Hi Camille i am from M'sia and my full sympathy to you too as my son age 20 also share similar feelings of depression & frustration on why this shud happen to him and not having a normal life like others.

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