Chat and Community Forums Closed

Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

My first seizure

Hello everyone, my name is Dominika. I was diagnosed with epilepsy at the age of 25. I just recently experienced my first seizure ever which was extremtly terrifying. I have just started my new job in sales which requires me driving but for now I can't drive which makes this very frustrating to me. This is all very new to me, being on track with my medications, not being able to drive, etc. I feel like I am going crazy just sitting home and working from home all day everyday. Any advise? I'm seeing my neurologist on the 16th I haven't had any seizures since.

Comments

Hi,Thank you for sharing your

Hi,Thank you for sharing your story and we understand your frustrations. Being diagnosed with epilepsy can be upsetting and make you feel isolated and alone. However, it’s important to remember that you are not alone, and we are here to help support you. If you ever need to speak with someone please contact our Epilepsy and Seizures 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources.1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline   One of the most important things to help you live with epilepsy is to find a support network. Learn more about your community support options here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concernsOr contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates  to find support groups, events, and programs in your community.It is also important to recognize that epilepsy is more than just seizures, overall well-being and emotional health is just as important:  https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health   Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about what epilepsy is, what resources are available, how to make the most of doctors' visits, and how to take control of seizures, seizure first aid & safety. Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilep... are glad to hear that you are continuing to follow-up with your neurologist, to review how you’re feeling and if you experience any changes in seizure types/ frequency, moods, behaviors, side effects or symptoms to help determine what individual treatment plan is best for you. Additionally, you may want to consider keeping a journal or diary. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-... a great tool for identifying & tracking seizures, setting reminders,managing medications & side effects, recording medical history, moods, behaviors, triggers,and other personal experiences and therapies, that may affect seizures and wellness, which can be shared with your healthcare team.

Hi Dominika,Epilepsy is  very

Hi Dominika,Epilepsy is  very terrifying.  I was diagnosed as a toddler at the age of 18 months when I had 2 Grand Mal seizures (today they are called Absence Epilepsy since I had a high fever or simply Focal Awareness Impaired Seizure whereby no fever was detected).  Between the time of being a toddler and up to Age 9, I was seizure free even though my mother gave me anti-seizure meds for only a few months as I was a toddler.Anyway, at age 10 I had another Grand Mal seizure, followepd by 7 years of Petit Mal seizures.Long story short, I have family history of both Epilepsy and Lactose intolerance (ie, dairy related food would caused great nausea).   Are you the only person in your entire family history who is an Epileptic?

hello,I can really feel you

hello,I can really feel you about driving because I am not allowed to drive as once while driving I got a seizure and I crashed my car into someone.I know how it feels when you cant drive ,when you are like house arrest but it is good for us and others .All we can do is take the medicine which your doctor prescribes ,be very very positive,do yoga or some exercise It is very difficult to be positive when nothing is going right in life but this is only you can do.

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline
P