My epilepsy story

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Hello, I want to share my story on the epilepsy I'm currently suffering from. I am your average 26 years old male. First of all let me start with the very first one I had. It was about 5~6 years ago, I was driving with my girlfriend out of her apartment complex, then all of sudden I ran into a gas station light pole. Thank god nobody got hurt, but my girlfriend is very tiny and the airbag blew on her. From what I remember her saying was that I just stared blank at something while I was driving, didn't response to any of her words and it took about 7~10 seconds from me to running into that pole. At the end, I totaled that car and didn't realize I had a seizure and just thought that I passed/blacked out. The second seizure happened after a year ago again I was driving (this time by myself) and all of sudden I remember confused on that my airbag was blown and I was completely stopped. I had no memory of what just happened or realized that I got into a car accident. After the accident, I went to the hospital done some testing such as MRI, Ultrasound, and finally EEG. The doctor got back with me couple days later saying that they see seizures thru my EEG test. I was nervous and searched everything that relates to any seizures. So, from that on I saw the doctor and he have prescribed medicines that I never heard of. First it took time to get over all of the side effects that my medicine has given me, but I haven't had seizure so it was okay. 3~4 years later, I went to my native country in Asia for my wedding with the girl that used to be my girlfriend. I was suffering from lower back pain problems and decided to see the doctor for it. He took a MRI test of me and told me that I have a herniated disc in my lower spine. And he prescribed me their medicine (made with Chinese herbs) and told me that this wouldn't interfere with my health conditions with seizures. However, after we got married and I got back into the states, I had another episode of seizure. This time it wasn't something that I ever expected. I heard back from my apartment complex manager saying that if I had any incident with one of the other person in the drive way, and then I had a flashback of me going into someone's car. Manager told me that I tried to get into a car that I did not know of, and tried to steal their "biscuits." This may sound hilarious, but it all came back to me that I had some memory of it but I just let it go thinking I was daydreaming. I was afraid that I still don't remember how the guy in the car looked like, and that they called the cops on me but I explained my health conditions to the cops and everything was okay. I went into the doctor next morning and told her that I've been taking medicines I brought back from Asia for my back pain problems. She recommended me to get off it immediately. A month later, another episode of seizure happened. This was when my wife and I were had dinner and she offered if I wanted some fruits for desert. I don't remember her speaking these to me and in fact, she told me that I wanted "apple" but I do not have any memory of it. I was very scared so we went into the doctor's office again next day. They increased my dosage on the medicines I've been taking to see that would help at all. However, it did not help with the on going seizures. A month later, I was driving again (I shouldn't have driven) on my way to work and I was smoking cigarettes. It felt kind of awkward and realized that I have no memory of throwing the cigarette bud anywhere. As soon as I got to work, I looked below my seat and saw the cigarette. I was very scared and from that on I stopped driving. We went into the doctor next morning, and the doc has prescribed the double dosage of what I was taking originally. For the second opinion, my wife and I got in touch with different doctor and went to see her instead. She gave us variety of options that I can take but instead we decided to stay with the doubled dosage of medicine I've recently prescribed for. I told the new doc all of the stories I have gone thru with taking herbs for back pains and all of the episodes. From then on, I haven't had seizure for 4 months and I will be able to drive again in 2 months now. I'm still pretty scared and have very much of anxiety within me everyday every hour. I feel like when I do something, I'm afraid thinking that was that a seizure I just had or thinking is this the "deja vu" or is this the odor that I smell if I have another seizure kind of thing. I live everyday in fear that I might run into seizure because I know it cannot be curable, but controllable rather. My wife and I are planning on having a kid in near future, but I'm afraid seizure might come in place and will pass it to my loved ones. Thank you for reading this long story of myself.

Comments

17 years ago in 2000, On

Submitted by Nannoo on Sun, 2017-04-02 - 06:19

17 years ago in 2000, On Wednesday, I went to the emergency department with a severe headache, night sweats and a sore neck. It is very alarming as I had cared for a patient with meningitis the days previously. On the friday night I woke up with night sweats again, vomitting from 3-4am that still hadnt stopped by 7am. At this point I went to my neighbours home and asked them to drive me to hospital because my headache was now really bad, and couldn't stop vomitting. I found out later my neighour said I was not talking sensibly.My head CT showed what they thought were two massive strokes, one in my right frontal lobe and one in my temporal lobe.I was then transferred to a bigger hospital. At that hospital they thought I had endocarditis. I still had bad headache and now hadn't eaten for 3 weeks. I was also getting more aggressive.the Doctors then transferred me to a huge Neurology specialty hospital where they thought I had massive cerebal abceses and went into drain the frontal lobe one.By this time i had two large frontal lobe, a large left temporal lobe and small parietal lobe lesions. During the crainiotomy, they took a biopsy since there was no abcess to drain.The biopsy showed a "demylination process" such as MS. I never got a formal diagnosis of MS and have never had a motor or physical symptom.I was discharged afer 7 weeks in May. That December I was at work doing a night shift and rememerber asking my patient if they had swallowed their tablet, but then woke p 3 hrs later in emergency room. My one and only Grand Mal seizure.Since then I have only minor focal seizures on my left side that are an immense pressure in my left neck, and then goes to my left arm at times..In the last year I had one night when I had 34 seizures after i was given some intravenous tramadol.I have had different days of seizures, four of which were my own fault as I became addicted to some medications that lowers my seizure threshold. My last two are completely and utterly stress related so I have taken 3 weeks emergency sick leave to deal with the stress. Anybody else have seizures related to severe stress?I have also noticed my memory is BAD for a few weeks after a seizure and my word finding is hard which I hate as I am studying my Masters, and I also work in a highly specific and stressful position.

17 years ago in 2000, On Wednesday, I went to the emergency department with a severe headache, night sweats and a sore neck. It is very alarming as I had cared for a patient with meningitis the days previously. On the friday night I woke up with night sweats again, vomitting from 3-4am that still hadnt stopped by 7am. At this point I went to my neighbours home and asked them to drive me to hospital because my headache was now really bad, and couldn't stop vomitting. I found out later my neighour said I was not talking sensibly.My head CT showed what they thought were two massive strokes, one in my right frontal lobe and one in my temporal lobe.I was then transferred to a bigger hospital. At that hospital they thought I had endocarditis. I still had bad headache and now hadn't eaten for 3 weeks. I was also getting more aggressive.the Doctors then transferred me to a huge Neurology specialty hospital where they thought I had massive cerebal abceses and went into drain the frontal lobe one.By this time i had two large frontal lobe, a large left temporal lobe and small parietal lobe lesions. During the crainiotomy, they took a biopsy since there was no abcess to drain.The biopsy showed a "demylination process" such as MS. I never got a formal diagnosis of MS and have never had a motor or physical symptom.I was discharged afer 7 weeks in May. That December I was at work doing a night shift and rememerber asking my patient if they had swallowed their tablet, but then woke p 3 hrs later in emergency room. My one and only Grand Mal seizure.Since then I have only minor focal seizures on my left side that are an immense pressure in my left neck, and then goes to my left arm at times..In the last year I had one night when I had 34 seizures after i was given some intravenous tramadol.I have had  different days of seizures, four of which were my own fault as I became addicted to some medications that lowers my seizure threshold. My last two are completely and utterly stress related so I have taken 3 weeks emergency sick leave to deal with the stress. Anybody else have seizures related to severe stress?I have also noticed my memory is BAD for a few weeks after a seizure and my word finding is hard which I hate as I am studying my Masters, and I also work in a highly specific and stressful position.

17 years ago in 2000, On Wednesday, I went to the emergency department with a severe headache, night sweats and a sore neck. It is very alarming as I had cared for a patient with meningitis the days previously. On the friday night I woke up with night sweats again, vomitting from 3-4am that still hadnt stopped by 7am. At this point I went to my neighbours home and asked them to drive me to hospital because my headache was now really bad, and couldn't stop vomitting. I found out later my neighour said I was not talking sensibly.My head CT showed what they thought were two massive strokes, one in my right frontal lobe and one in my temporal lobe.I was then transferred to a bigger hospital. At that hospital they thought I had endocarditis. I still had bad headache and now hadn't eaten for 3 weeks. I was also getting more aggressive.the Doctors then transferred me to a huge Neurology specialty hospital where they thought I had massive cerebal abceses and went into drain the frontal lobe one.By this time i had two large frontal lobe, a large left temporal lobe and small parietal lobe lesions. During the crainiotomy, they took a biopsy since there was no abcess to drain.The biopsy showed a "demylination process" such as MS. I never got a formal diagnosis of MS and have never had a motor or physical symptom.I was discharged afer 7 weeks in May. That December I was at work doing a night shift and rememerber asking my patient if they had swallowed their tablet, but then woke p 3 hrs later in emergency room. My one and only Grand Mal seizure.Since then I have only minor focal seizures on my left side that are an immense pressure in my left neck, and then goes to my left arm at times..In the last year I had one night when I had 34 seizures after i was given some intravenous tramadol.I have had different days of seizures, four of which were my own fault as I became addicted to some medications that lowers my seizure threshold. My last two are completely and utterly stress related so I have taken 3 weeks emergency sick leave to deal with the stress. Anybody else have seizures related to severe stress?I have also noticed my memory is BAD for a few weeks after a seizure and my word finding is hard which I hate as I am studying my Masters, and I also work in a highly specific and stressful position.

My daughter Hannelore was

Submitted by clinton_595452214863f on Thu, 2017-06-29 - 03:59

My daughter Hannelore was diagnose May 2005 with epilepsy when she was three year old, She had suffered an epileptic attack and showed no sign of recovery.though we tried several drugs and medications, The situation grew worse this year 18 April 2017 each day and she didn't want to live anymore. After a week, she was hospitalized due to pneumonia and the other symptoms she was experiencing. i and my wife have to pray all day and night for her to recover, because she is our only daughter. the doctor run a test on her, and the tests they ran revealed that her salt levels in her blood were nearly zero and her blood pressure was 110/180!This was on Saturday. On Monday, Mr john Okafor who is my tenant visited me and my daughter in the hospital, and i told him what my daughter is going through, and he told me that Epilepsy is curable in African, that in their village in Nigeria, they have the herbs that cure Epilepsy and i ask i immediately how can i get it,because i love my daughter and she is my one and only, and he told me he has to call his uncle to get the herbs, and his uncle did, and send it to us here in Houston, and it was delivered to us in three days, we commence with the treatment from herb as his uncle prescribe, and i four days i saw signs that my daughter is recovering from this epilepsy disease, we leave the hospital and went home to continue with the herbs, and she was able to walked around the garden for about 15 minutes enjoying the spring flowers on the second day at home, she was able to consumed the recommended dosage by 25 may 2017, i drove her an her mother to the hospital last week for epilepsy reassessment,and the doctor confirmed that there is no trace of any epilepsy symptoms, I feel I need to let others know as well. Please feel free to contact the foundation that provided me with herbs, viaEmail: okaforepilepsyfoundation@gmail.com, phone contact +2349038282887,

Very scary story. Please

Submitted by Mojestic on Sun, 2017-07-16 - 08:12

Very scary story. Please know this is just my advise. I am not a doctor, but have fulky recovered from seizure a long time ago. Clean up your life!!! Thisvwill clean up your cells. Start eating as healthyvand as clean as possible. Only eat whole foods and drink water or water with fruit cutbup in it. Do not put anymore chemicals in/or on your body. This means stopping smoking, drinking alcohol/coffee/tea. Drink the purest water you can. Stay hydrated and get good eleytrolyte drops to add sparingly to that water. Once you start looking into all the chemicals you are exposing your cells to, you will be enlightened. You will know the pesticides, fertilizers, the coated cookware, the chemical in cleaners, off gassing from waterproofing of textiles, paints, cosmetics, fluoridated water, etc. are all bioaccumulative. Get and read a book by Dr. Michael Gerger called, "How Not to Die", start eating plant based. If you must eat flesh, make it the tiniest amount of the best, cleanest and grassfed, wild caught possible.I mention glutamates/glutylates MSG specifically. They, like black pepper, effect cell permability--they screw with the cell walls!!! Research and educate all this yourself. You are what you eat, literally and figuratively. I truely believe in my case, my epilepsy was from mercury toxcity from both the old fillings taken out by an unqualified mercury removal dentist (which liberated mercury into my cells), mercury and the other heavy metal leeching from 2nd set of almalgam fillings. AND all the fluoride from fluoridated water, fluoriquiniliun antibiotics, fluoride containing anti yeast medicines, and fluoride from tea (YES! Tea is is a major scource of fluoride since it is a plant that is a natural bioaccumulator of fluoride) and fluoride from anything made with gelatin. When I detoxed my life, body, cells, food, drink, water, life I stopped having seizures.Good luck to you. This is a major commitment to change your lifestyle to become clean and practice mindfulness. By educating yourself now about how to limit and avoid toxins, you will be makibg not only mom and dad be healthier, but will be setting up a cleaner, non toxic life for your child to be. Mo

Very scary story.  Please know this is just my advise.  I am not a doctor, but have  fulky recovered from seizure a long time ago.  Clean up your life!!!  Thisvwill clean up your cells.  Start eating as healthyvand as clean as possible.  Only eat whole foods and drink water or water with fruit cutbup in it.  Do not put anymore chemicals in/or on your body.  This means stopping smoking, drinking alcohol/coffee/tea.  Drink the purest water you can.  Stay hydrated and get good eleytrolyte drops to add sparingly to that water.  Once you start looking into all the chemicals you are exposing your cells to, you will be enlightened.  You will know the pesticides, fertilizers, the coated cookware, the chemical in cleaners, off gassing from waterproofing of textiles, paints, cosmetics, fluoridated water, etc. are all bioaccumulative. Get and read a book by Dr. Michael Gerger called, "How Not to Die", start eating plant based.  If you must eat flesh, make it the tiniest amount of the best, cleanest and grassfed, wild caught possible.I mention glutamates/glutylates MSG specifically.  They, like black pepper, effect cell permability--they screw with the cell walls!!!  Research and educate all this yourself. You are what you eat, literally and figuratively.  I truely believe in my case, my epilepsy  was from  mercury toxcity from both the old fillings taken out by an unqualified mercury removal dentist (which liberated mercury into my cells), mercury and  the other heavy metal leeching from 2nd set of almalgam fillings.  AND all the fluoride from fluoridated water, fluoriquiniliun antibiotics, fluoride containing anti yeast medicines, and fluoride from tea (YES!  Tea is is a major scource of fluoride since it is a plant that is a natural bioaccumulator of fluoride) and fluoride from anything made with gelatin.  When I detoxed my life, body, cells, food, drink, water, life I stopped having seizures.Good luck to you.  This is a major commitment to change your lifestyle to become clean and practice mindfulness.  By educating yourself now about how to limit and avoid toxins, you will be makibg not only mom and dad be healthier, but will be setting up a cleaner, non toxic life for your child to be.  Mo   

Very scary story. Please know this is just my advise. I am not a doctor, but have fulky recovered from seizure a long time ago. Clean up your life!!! Thisvwill clean up your cells. Start eating as healthyvand as clean as possible. Only eat whole foods and drink water or water with fruit cutbup in it. Do not put anymore chemicals in/or on your body. This means stopping smoking, drinking alcohol/coffee/tea. Drink the purest water you can. Stay hydrated and get good eleytrolyte drops to add sparingly to that water. Once you start looking into all the chemicals you are exposing your cells to, you will be enlightened. You will know the pesticides, fertilizers, the coated cookware, the chemical in cleaners, off gassing from waterproofing of textiles, paints, cosmetics, fluoridated water, etc. are all bioaccumulative. Get and read a book by Dr. Michael Gerger called, "How Not to Die", start eating plant based. If you must eat flesh, make it the tiniest amount of the best, cleanest and grassfed, wild caught possible.I mention glutamates/glutylates MSG specifically. They, like black pepper, effect cell permability--they screw with the cell walls!!! Research and educate all this yourself. You are what you eat, literally and figuratively. I truely believe in my case, my epilepsy was from mercury toxcity from both the old fillings taken out by an unqualified mercury removal dentist (which liberated mercury into my cells), mercury and the other heavy metal leeching from 2nd set of almalgam fillings. AND all the fluoride from fluoridated water, fluoriquiniliun antibiotics, fluoride containing anti yeast medicines, and fluoride from tea (YES! Tea is is a major scource of fluoride since it is a plant that is a natural bioaccumulator of fluoride) and fluoride from anything made with gelatin. When I detoxed my life, body, cells, food, drink, water, life I stopped having seizures.Good luck to you. This is a major commitment to change your lifestyle to become clean and practice mindfulness. By educating yourself now about how to limit and avoid toxins, you will be makibg not only mom and dad be healthier, but will be setting up a cleaner, non toxic life for your child to be. Mo