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intense fear right after coming out of a grand Mal
Wed, 11/07/2018 - 15:33Topic: Share Your Story
After a tonic clonic seizure I feel terrified, like the worst panic attack you could imagine, it starts as soon as I come out of it, the first thing that is clear to me is that I'm terrified, I don't know my name, my husbands name, I don't remember the day earlier, eventually it comes back, but the feeling after my seizure scares me more than the seizure itself. My husband says I mumble gibberish, and then comes the terrified stage, I usually say help me, or tell my hubby how scared I am, I have a strong feeling of impending doom, it goes away in 5-10 minutes, does anyone else experience this?
Comments
Recently Ive developed
Submitted by marcyinkandstylist on Wed, 2018-11-07 - 15:49
Recently Ive developed absence seizures, on top of my grand mals, they have no warning, they come out of nowhere anytime of day, but my grand mals only happen when I am sleeping. so I have never experienced the aura before. I can count on one hand the number of tonic clonics I've had from 12-37yrs old. I know how you feel, I'm constantly apologizing to my husband, especially right after I have one, but, he is amazing, his brother was epileptic, so he knows just what to do, and is very understanding. if you ever need to talk Im here, I know how hard it is, and how alone you can feel, but you are not alone, you'd be amazed how many people suffer from epilepsy.
I have status epilepticus or
Submitted by carolyn kuns on Wed, 2018-11-14 - 21:28
I have status epilepticus or tonic clonic seizures. I was diagnosed at 66 for the first time. I was attacked in 1991 and had TBI and PTSD. Now I have epilepsy too as a result of scar tissue on my brain. I am learning to deal with it with family support but it is hard many days to get used to the limitations. Thank God I am retired and that my husband is so supportive. I do want input from other people who have this illness so I can better understand it and help not only myself but also my family. I had my second one this September 2018 but it was much shorter. Hope I can help a little as you help me too.
Hi marcyink, I've been told
Submitted by meganblas on Wed, 2018-11-07 - 15:42
Hi marcyink, I've been told that after a grand mal seizure I walk around mumbling as well. I feel the "impending doom" before a seizure happens and warn my fiance or if I'm unable to communicate, I keep it to myself and try to calm myself out of it. The worst feeling is shame and the inability speak. Once I'm semi-conscious I tend to cry because I'm disappointed that I had another seizure.