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I was born Epileptic
Fri, 06/22/2018 - 02:56Topic: Share Your Story
As a kid, I was always told I was a good baby. I never really cried, yelled, or not slept. In fact I was told I always looked very focused. As I grew up I remember always being tired. I woke up barely able to open my eyes. The only thing that could every wake me up was my MP3, to which I would blast and instantly it put me in a different mood. When I was in a car and the shadow of overlapping trees passed by my face, the constant light to shadow made me feel nauseous. Then I was tired again. Time suddenly moved so slowly I could barely go to class without feeling dizzy. I thought I was doing it to myself because I didn't want to go to school. So I pushed through. At home my mom would yell at me for something I did, or not doing something I was suppose to do. I would have no idea what she was talking about so I took the disapline. I didn't know I was epileptic till I was 18. When I told my doctor my story, he suggested I was probably epileptic for a very long time. I had grown up with it, and I had learned to live my life despite of it. I'm writing this now not so you can be sad or tell a tale about my 'courage', but because I've realized I have no idea when seizures are happening. I'm suppose to record, but I don't know what to write down. If I wrote down my day with seizures, i'd be writing, "I had a normal day." Do you guys feel that way? I'm afraid that I'm having seizures and I'm just blowing them off. Which is not good. I don't want future damage. I need advice.
Does your mom recognize you
Submitted by birdman on Fri, 2018-06-22 - 21:49
Does your mom recognize you are having seizures? You said she disciplines you for events you don't remember. I hope she is able recognize and understand what your seizures look like and how she should respond. Maybe your mom should go with you to the doctor and there this should be discussed.I have occasional complex partial seizures or "focal seizures with loss of awareness". I remember as a child I was angry when others told me about the events that happened and what I did (one time I was told I was trying to put on my mother's high heels). Then I got angry when my mother spoke to doctor about the spells I had where she said I would stare and make chewing movements. "No I don't" I would reply! I had to depend upon others for information that I had these seizures.Today (more than forty years later) I still have these seizures, and since I like to work alone many times there is no one to witness them. But after they are over as soon as I recognize that I am confused I am quick to ask myself, "did I have a seizure?" Often times I can recall events that happened earlier and then I can figure out that I should remember some things that would have happened after that which I cannot. With that logic I can figure out that I had a seizure even though I do not remember the spell at all.You're absolutely right that you need to acknowledge the seizures as best as you can. If you are concerned that you are have seizures and cannot remember them your doctor should be able to help you with this. Write down all the symptoms or reasons that you think you are having seizures and make sure to tell this to doc.