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I was 15 when I had my first seizure and now I’m 21.

This is something that I’ve always kind of wanted to talk about with people who have been through it, so I only talk about it when I have to. I had my first grand mal seizure when I was 15. Then they just kept coming randomly in the morning, usually when I don’t get enough sleep. The EEG couldn’t tell what part of the brain was causing these so I was diagnosed with generalized epilepsy. After having a seizure I get the worst headaches not to mention whatever part of my body I hurt, I usually end up going to the Urgent Care to get stitches every time. The seizures, or not being able to drive wasn’t as bad as being made fun of for it. Anyone who lives with epilepsy knows that is hard enough already. Anyways the first time I told someone at school they listened and seemed to care, but the next day at school people started calling me “seizure boy”. I didn’t do anything about it hoping they would stop and then I couldn’t take it one day so I fought back against the person who wouldn’t shut up that day in the locker room. It didn’t last long until other people broke it up, but it made everything worse the teasing was more creative. I have only talked about this one other time, because it’s not easy. Once I graduated high school I thought things would get easier I never talked to anyone from there since. This didn’t make life easier for me though, because there is no running from my seizures. I still have about 2-3 seizures a year randomly, but I’ve learned to live with it. I don’t wake up everyday hoping one day to get better, because that might not ever happen. Life doesn’t get easier with epilepsy, but you just become stronger. I never wanted to kill myself and mean no offense at all to people who have lost someone to SUDEP, but during high school I hoped every night I wouldn’t wake up in the morning and it would be because of that. I don’t feel that way anymore though, and it’s because I don’t let anything get to me because stress is bad and I think to myself “this isn’t worth having a seizure over so let it go”. This is my story, I hope that who ever is reading this can take something away from this that will help them be stronger.

Your friend,
Jake

Comments

Hi my name is James Wilson

Hi my name is James Wilson and I am 33 and yes I take away something from this because believe it or not I started having right temporal lobe Epilepsy when I was thirteen months old and it is not a easy road I agree with you. I never got picked on except for in middle school. After middle school I wrestled in high school for four years and played football for and ran track for for one and I was in art club for a couple years and in Air Force ROTC for four years. My point of my story is I always someone pushing me to go higher and go further and if anyone made fun of my seizures it would not hurt me it would push me even harder and make work harder. This also does not include that I have a two college degrees a associates in graphic arts and a bachelors in business administration. So if I was give you any advice bud don’t listen to the people make fun of you they no idea what are going through just keep your and stay determined because as long as you have faith and drive you can accomplish any dream that you put your mind to.

I’ve suffered from sezures

I’ve suffered from sezures when I had my first one (and a grand maul one at that) when I was 17 months old. I was a still birth, born a week short of when a baby’s longs are normally fully developed. Didn’t get enough oxygen to my brian and have had seziures ever since. I’m now 29 years old. Seziures are still uncontrolled, even with meds and a VNS implant. Can’t drive, suffer short term memory imparment, and facial blindness ( inablity to recognize and distingush people apart.)  I graduated with a bacholures degree from college, live independently, and work.     As you said, no running from your seziures. Most of my seziures occur at night when I’m home. 5th and 6th grade I did have seziures at school. Usually lasted 2 minutes or less. Was often embarassed to tell the teacher when I had one.      Unlike a lot of people who’s stories I read, I was never bullied as a child for my sezures. On the contrary, people were often interested in listening to me talk about them. Most people have the idea of an eplieptic stuck in their head as somebody who suddenly falls to to the ground and starts drowling. So when people  found out I had epilepsy, they wanted to hear first hand for themselfs from a real life eplieptic, if epielepsy is really like what is portrayed as. I even used my eplepsy as a topic for a few class speeches.     What does annoy people is my memory imapirment ( a by-product of my eplilepsy). Most often at work in regards to  remembering how to do things. It irreates people having to remind me or correct me over and over again. Overcoming that is in  another ball park aside from epillepsy.      As the people around you in your life get older and mature, they come to know it’s bad manners to ask a person about their epliepsy.  The teasing may lessen as you get older and the people around you in life mature.     

There is a GREAT blogger in

There is a GREAT blogger in Ireland...Kevinskick. Also another guy Seize and Destroy. You may enjoy connecting with these two young men.(Wordpress)

I understand where you're

I understand where you're coming from - I read posts on this site because my son has epilepsy - he was bullied, teased and shamed a lot of the time; it is hard to live with and hard to watch someone you love go through it with no real way to help.  Stress and anxiety are very strong triggers and I hope you can keep up the resistance to it.  As you say "this isn't worth having a seizure over" - very good advice!

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