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I wanted to share my story..

Fri, 09/15/2017 - 07:57
My name is Dillon and I have grand mal seizures. My epilepsy wasn't something I was born with, it's a result of a head trauma to my left frontal lobe that I got when I fell asleep at the wheel in 2011. My first seizure happened a year later whole I was at work and ever since then I have been having them every 2 weeks-to a month like clockwork. Sometimes I'll go a few months without one but that normally just means my next one is going to be especially brutal. I am from California but was living in Idaho when my first seizure happened, my mother who lives in the San Francisco offered me her Kaiser insurance to figure out what was going on and since that is where their seizure ward is located obviously I kept at the opportunity. I spent the next year and a half working with Kaiser trying to figure what was going on, doing everything they were allowed to do to figure out until their neurologist eventually suggested that I drop Kaiser as my insurance so that I could do some things that were more experimental that were outside what they were allowed to do. He suggested the Vagus nerve stimulator (VNS) so I found a neurologist who would do it and had it implanted. I continued having seizures but how violent they were decreased a noticeable amount according to the people who watched them. During all of this I tried every medication possible and am now looking at brain surgery as an option because there isn't much else. I've done all the meds and ive had what is basically a pace-maker for my brain planted so since my epilepsy is the result of an injury surgery is something that could work. (The thought of cutting my skull open kinda freaks me out though haha) So that's where I'm at now. The first seizure happened in November of 2012 and it September of 2017 right now so I can tell you that whole 5 years can't measure up to what some of you are going through, I understand. I've walked put of a restaurant, blacked out, had a seizure by myself in the snow, and woke up missing a tooth with a road rash all over my face because I had the seizure face down and no one found me. I have bitten half my tongue off and almost died choking on my own blood, this list could go on... People without epilepsy will never understand how this is and we can't expect them to, but don't feel alone either. More people have it than you think.

Comments

Dillon -- I've had temporal

Submitted by jkghjkkkgg on Sun, 2017-09-17 - 19:17
Dillon -- I've had temporal lobe seizures since my teen years,(now 70) and tried various meds with limited success.  Latest is keppra,,and am also considering surgery.  Had tests, to show seizures come from right temp lobe, and WADA procedure to show surgery should be safe.  Still debating with myself whether to pursue surgery or continue with meds.  Currently not driving, and surgery seems best hope of getting behind the wheel.-- John

CBD! Look up some

Submitted by kshroads on Sat, 2017-10-14 - 16:15
CBD! Look up some testimonials on youtube of CBD and it's help with those having seizures, its incredible. I work with a company who's trying to spread the word so anyone can use it to help change their lives. Ill attach a link below - but please research CBD's effects on seizures so you can see for yourself how amazing it is. It's completely natural / non addictive / non psychoactive/ helps with just about everything in the human body. Were on the forefront of CBD research and so far the results are INCREDIBLE. Heres a link to check out a list of our products (I suggest trying the tinctures) - I am here to help! If you know of anyone who could benefit from this information - please copy this link to them so they can get some potential relief from their epilepsy. Thankyou - I wish everyone the best. http://arenalife.com?afmc=23&utm_campaign=23&utm_source=leaddyno&utm_medium=affiliate

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