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i dont know what to do . .

Sun, 11/19/2017 - 14:49
my name is phia, i am 20 years old, but was diagnosed with epilepsy when i was 12 years old. epilepsy changed my world around. if i could tell my whole story, id be typing for hours, days, months! & i wish i was exaggerating. from having 2-3 seizures a day, i only have them every couple of months. it's been like this for about 2 years now. so, for the past few months i've been really mad and sad. ill get so angry & then start crying at random times. i didn't know what was wrong with me, i still dont know what's wrong with me. these past few weeks have been at it's worse. i hate that im hurting my parents by not wanting to be with them, i hate the fact that i hate being home. i cant stand being home. i feel so trapped when im home. i have these mental breakdowns when im alone at home. so i decided to get an apartment & well, that failed. my parents flipped a switch & when i told them why i desperately wanted to leave the house. . they cried & i wanted to die. i hate the fact that i hate being in my home that i grew up in. a home my parents worked very hard for. they ask me what can we do to "fix" the situation, & i told them maybe boxing or something to let out my anger. (i dont know..) so yesterday my mom had mentioned that i might have PTSD. post-traumatic stress disorder. she explained to me, that maybe somewhere in the back of my mind when im in my house & i see something that reminds me of a really ad seizure i've had, or even a little seizure that ruined a night of me going out with the few friends i had, (i was bullied because of my epilepsy) so when i see that one something, it triggers me & that's what makes me so angry & makes me cry & makes me hate being home. i thought i was just going back into depression, but now this whole PTSD thing is making sense to me. i wish i could word this better. im not too good at this, this is my first time on here.. i dont know what to do. i hate this feeling so much & i just dont want to be here anymore.

Comments

i feel it's so weird, there

Submitted by PhiaLoren38 on Mon, 2017-11-20 - 12:50
i feel it's so weird, there was a point in time where i accepted my epilepsy & i would always say, "i have epilepsy, epilepsy doesn't have me!" but now i don't have that mindset anymore and i don't know why. i wake up and tell myself every morning that im okay. i'll be great today! it's 9:50am. . my day barely started and i cant go back to the mindset i used to have. i feel like i was so strong before & now im falling apart.  

Wow, your story sounds so

Submitted by PhiaLoren38 on Mon, 2017-11-20 - 16:28
Wow, your story sounds so similar to mine. is it weird to say i feel i was robbed of my teenage years? In high school, everyone called me a walking zombie. I didn't want to do anything; eat, shower, go out, etc.. i feel like im going back to that & im trying my best to not to. i write A LOT! (i even have all my journals since i was in the second grade!) i also sing, play the alto sax and guitar. that used to be my escape from everything, writing music was the best. but now... i feel nothing. i feel numb. i was on Keppra when i was first diagnosed and that's what made me a "walking zombie". when i switched, i was back to my normal self. bubbly, always laughing, loved to perform even if it was just for my family. i feel like maybe because im older and my body is changing (even though im already 20) so is the medication..? 

I don't think it's weird. You

Submitted by Megan_K21 on Tue, 2017-11-21 - 13:11
I don't think it's weird. You probably started your medications as soon as you were diagnosed at 12 and onwards. There's so much switching and trying that has to be done. The doctors have to see how you react to different medications. One medication might work great for one person, but not so well for another. In this case, Keppra I've been on for years. It's the medication I'm on now and the one that's helped me the most. My brother is also on it and he seems to be doing well on it. I'm glad you have different things that you can do that seem to help you. Have you tried picking them up, even with how you're feeling? It's possible that you're getting too used to your medication. Sometimes if you take the same medicine at the same dosage for too long, your body gets too used to it and it stops pretty much working. That's what I've been told in the past anyways.

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