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First time.
Tue, 11/05/2019 - 06:14Topic: Share Your Story
Hi all, I'm Todd and have TLE and CPS. I have had surgery for this and tried several meds all to no avail.
Hi Todd, Thank you for
Submitted by Anonymous on Tue, 2019-11-05 - 06:45
Hi Todd, Thank you for sharing your story, it sounds like you’ve been through a lot. It's important that you continue to follow-up with your healthcare team discuss your concerns and any changes in seizure frequency, side effects, seizure types, changes in behaviors and symptoms. It’s also important that you talk with your epilepsy team about your personal goals and expectations for your epilepsy surgery.https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/surgery/goals-and-expectations Recovering from epilepsy surgery is a journey and every individual experience and path is different. Learn more about the recovery process and common themes for people living with epilepsy & family members during their journey through epilepsy surgery, here: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/surgery/recovery-and-life-after-surgeryIt is also important to recognize that epilepsy is more than just seizures, overall well-being and emotional health is just as important: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health The Wellness Institute: epilepsy.com/wellness ,has many helpful and easy-to-use tips &resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family. For practical & effective strategies to enhance your well-being, learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools One of the most important things to help you live with epilepsy is to find a support network. Learn more about your community support resources, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concernsAdditionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline