Epilepsy and psychogenic

Hi Jeremycarew, Thanks so much for sharing your story.It’s important to remember that you are not alone. However,we know that being diagnosed with epilepsy can be upsetting and make you feel isolated. We are happy to hear that you have a good support system in place. Sometimes it’s helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find & give support to each other. Contact your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community. Additionally you may contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources,  provide referrals and additional support.epilepsy.com/helpline   It is important to recognize that epilepsy is more than just seizures, overall well-being and emotional health is just as important:  https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health   The Wellness Institute:  epilepsy.com/wellness   ,has many helpful and easy-to-use tips & resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family.  For practical & effective strategies to enhance your well-being, learn more here:  https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools It’s also important that you continue to follow-up with your healthcare team to express your concerns, determine what is best for you and if you experience any changes in seizure types, frequency, behaviors, side effects and symptoms. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf Learn more about PNES & challenges with epilepsy, here: https://www.epilepsy.com/learn/types-seizures/nonepileptic-seizures-or-eventshttps://www.epilepsy.com/learn/challenges-epilepsy 

Thank you, I need help with finding more people to connect with, as I I am the only one in my family who has it 

Hi Jeremy my heart goes all out to you. I hv gone thru similar hell as my son now 21 is also suffering fr this for the past 18 years from age 3. He is having auras..jerking on the right hand before the seizure sets in. The auras will occur 2 or 3 times per day & if it is not strong aura than it will goes off.The past 5 months from March 2019 the auras been getting more & more frequent.We have done pet scan & eeg vtr just last month hoping to identify for a clue that cause the epilepsy but results shows idiopathy & we are at a complete lost now.To make matters worst he is starting to lost confidence in himself & we are so worried that depression may set it too as he broke down few times begging when can this goes off & is there no cure for it. He is on epilem for the past 18 years & looks like over the years its getting to be worst instead of out grown it as what we were hoping for. Its feels good to share my worries wth someone & BTW how old are you