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Epilepsy and drugs

Wed, 05/08/2019 - 19:28
Hi, I'm Stella and I've been diagnosed with juvenile myoclonic epilepsy since 2017. I've had five seizure attacks and most of them were because of keppra that i used to take. My doctor switched my medication with depakine started with 700mg per day and now since i do homoeopathy I take 200 mg per week. I thought i could use some help about drugs like lsd, shrooms,mdma, ecstasy I've been drinking a lot of alcohol in general it never caused me any seizures neither had weed. So if anyone knows about those drugs pls inform me. Thanks in advance.

Comments

Hi ltStrella, Thank you for

Submitted by Anonymous on Fri, 2019-05-10 - 10:59
Hi ltStrella, Thank you for your post.  Please talk to your doctor about these questions and your individual treatment plan. The effects and risks of so-called recreational drugs vary greatly, they may directly affect the brain and seizures or interact with seizure medications https://www.epilepsy.com/learn/triggers-seizures/drug-abuse . Moderate to heavy alcohol use is never recommended for people with epilepsy. Alcohol and some seizure drugs have similar side effects. Using both at the same time can lead to bothersome and potentially dangerous problems https://www.epilepsy.com/learn/triggers-seizures/alcohol, https://www.epilepsy.com/learn/triggers-seizuresFor ways you can help to manage your epilepsy visit https://www.epilepsy.com/living-epilepsy/healthy-living & https://www.epilepsy.com/learn/managing-your-epilepsyFor additional services, support, and referrals contact our 24/7 national helpline by emailing us at contactus@efa.org, and by calling, 1-800-332-1000,  https://www.epilepsy.com/living-epilepsy/247-helpline

In year 2004, I started to

Submitted by philip k on Mon, 2019-05-13 - 04:18
In year 2004, I started to have convulsive seizures at my freshman years in the university. After my second convulsive seizures within 5 days after the first one, I had done the EEG test, and then was diagnosed with epilepsy. I still had so many seizures within a week with the AEDs. I had many side effects from the meds, lost my jobs, driver's license, and ability to focus on studies at school. I took years off from the university. My neurologists told me he could not find what cause the seizures for me and it is dangerous many times because many seizures lasted more than 5 minutes and had multiple seizures at a time waking up in an ambulance or at the ER. I was only suggested surgical treatment to implant a device to control my seizures, which I did not want to do at the time. So after 3 years of trying AEDs, tests, following guidelines and advises from my neurologist, I tried to search for alternative treatment. I had taken different approach to control my seizures and finally after 6 months of alternative treatment, I became AEDs free, and seizure free. My neurologists could not believe my seizure was controlled without AEDs, and without any surgical device implantation. I asked him to sign release so my driver's license could be reinstated, but he told me he can not do it in short period of time. I went back to see him again in 2010, almost 3 years after not taking any AEDs and with no episode of seizures. After going through many exams thoroughly, he signed a medical report for me to get my driver's license back. He told me he had never seen anyone like me who had severe uncontrolled seizures becoming better in 6 months. He told me it is like a miracle. I had horrendous life with seizure. I know what people feel with seizures in their life. Sometimes I felt I was weak, and had so much frustration. I had no hope for better future at the time. After the alternate treatment I had, I found hope and healthier me. It is now 2019, and I am still seizure free, and meds free. I want to help people who have similar issues. I had helped 2 other individuals who also had seizures for more than 20 years. I can not guarantee 100% effectiveness for all types of seizures but when it works it works like magic. If you would like more info, let me know

I have JME and every time I

Submitted by Pettyae on Thu, 2019-05-23 - 23:07
I have JME and every time I drink it does intensify my "jumps".  I have never tried any other recreation drugs and honestly I have seen people with general epilepsy doing shrooms and they end up in the hospital.

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